Notice is hereby given that the Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online on Thursday 27 June … Continue reading Notice of the Nystagmus Network AGM 2023
Author: Sue Ricketts
Vicky’s 1984 Story
My favourite subjects at secondary school in 1984 were hockey, music and maths. Fast forward 40 years and those subjects still dominate my life. Professionally I’m Finance Director for an … Continue reading Vicky’s 1984 Story
Harshal’s 1984 story
The year was 1984 and in a little corner of Middlesex, a baby boy was just starting to explore the world, especially a local park that our family home shared … Continue reading Harshal’s 1984 story
John’s 1984 Story – The world is my chauffeur
We belong to many tribes, often overlapping, during our lives. The story of my nystagmus tribe starts in 1984. In particular, the day I first met others with nystagmus and … Continue reading John’s 1984 Story – The world is my chauffeur
Mike’s Southampton family send off
As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off
Kathryn’s 1984 story
In September 1984 I started my training as an orthoptist at Moorfields Eye Hospital School of Orthoptics. Back then orthoptic training was a three-year diploma course for which students received … Continue reading Kathryn’s 1984 story
Booking is now open for our London event
Our next big nystagmus meet up takes place in London on Saturday 13 July, from 11am to 4pm. This is your chance to hear all the latest nystagmus news, learn … Continue reading Booking is now open for our London event
Walk with us
On 18 and 19 May we’re encouraging all our followers and supporters to get out for a walk. The weekend falls during Mental Health Awareness Week. Spending time outside with … Continue reading Walk with us
Paul’s 1984 Story
Sometimes I really don’t know where the time goes. Back in 1984, it was my first year at secondary school, and my parents were extremely proud of me for getting … Continue reading Paul’s 1984 Story
Marlow’s Story
I was born with nystagmus and multiple other eye conditions. I was put in gymnastics at an early age to help with coordination and balance. This led me into cheerleading … Continue reading Marlow’s Story