Sue Ricketts – Page 49 – Nystagmus Network

Mike explains nystagmus and benefits at Open Day.

#YouMadeItHappen – Mike

This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Mike is a professional benefits expert who also … Continue reading #YouMadeItHappen – Mike

#YouMadeItHappen – Patsy

This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Patsy is one of our newest volunteers. It’s … Continue reading #YouMadeItHappen – Patsy

A survey on glaucoma and nystagmus

You can support the University of Cardiff team to develop new diagnostic testing for people with nystagmus by taking their survey today. “The Research Unit for Nystagmus at Cardiff University … Continue reading A survey on glaucoma and nystagmus

Bungee jump for nystagmus

The Nystagmus Network is offering a free bungee jump to anyone who can guarantee to raise at least £100 in sponsorship for the charity. Your jump can take place at … Continue reading Bungee jump for nystagmus

Would your child like a German pen friend?

Thanks to our partnership with the German Nystagmus Network, we can now offer children and young people, who have nystagmus, living in the UK, the chance to make friends with … Continue reading Would your child like a German pen friend?

Can I tell you about Nystagmus?

Nadine Neckles wrote the book ‘Can I tell you about Nystagmus?’ so that her young daughter, who has nystagmus, could live in a world more nystagmus aware. ‘Can I tell … Continue reading Can I tell you about Nystagmus?

Gift Aid awareness day

Please remember to tick the Gift Aid box when donating to charity. It makes such a difference to small charities like us, with an extra 25p coming our way for … Continue reading Gift Aid awareness day

Front cover of the booklet nystagmus and benefits.

Publication update

Thanks go to Mike Hughes, our volunteer benefits adviser and all round expert on everything to do with benefits and nystagmus. Mike has updated his booklet on DLA, PIP and … Continue reading Publication update

Could you walk eye to eye for nystagmus research?

In 2019 20 Nystagmus Network supporters, their friends and family members raised £11,500 for nystagmus research by taking part in the Eye to Eye walk. We’re doing it all once … Continue reading Could you walk eye to eye for nystagmus research?