New research explores parental experience of their child’s diagnosis


What is the psychological impact on parents immediately following a child’s diagnosis of congenital sensory impairment? Rebecca Greenhalgh, Trainee Clinical Psychologist at Coventry University is leading a new research project, funded by Coventry University, School of Psychological, Social and Behavioural Sciences, designed to gain a better understanding of parents’ experiences immediately following their child’s diagnosis … Continue reading New research explores parental experience of their child’s diagnosis

People’s perceptions of nystagmus and the impact of Covid-19


In November 2020, the Nystagmus Network shared news of a new research survey into people’s perceptions of nystagmus. The results have now been published. The responses to the survey show that people with nystagmus tended to predict that the public would not think that the condition affects their daily lifestyle as much as it actually … Continue reading People’s perceptions of nystagmus and the impact of Covid-19

Chloe says: it’s OK to have a bad day


The pressure to be positive as a disabled person In her latest post, award-winning blogger, Chloe shares her thoughts on the strain of staying positive and being an ‘inspiration’. The pressure to act a certain way is unfortunately more common than we care to admit. This might be pressure from social media, society or the … Continue reading Chloe says: it’s OK to have a bad day

SIGHT LOSS: MY UNSPOKEN REALITY


GUEST POST by Elin I’ve always had an honest approach when it comes to writing about sight loss. If you scour through my blog’s archives, you’ll find posts on anxiety, loneliness, bullying and the misconceptions, just to name a few. I think that the fact I’ve offered a window view into these strands of my … Continue reading SIGHT LOSS: MY UNSPOKEN REALITY

Visual impairment and mental health


Children aged between 8 and 11 years old who live with a visual impairment are three times more likely to develop a mental health problem than children with no visual impairment, according to new research. The Nystagmus Network has been aware of this for a long time and always highlights the social and emotional aspects … Continue reading Visual impairment and mental health