The logo of Glaucoma Awareness Week 2022

Glaucoma Awareness Week 2022

The Nystagmus Network is marking Glaucoma Awareness Week 2022, the UK’s national week to raise awareness of glaucoma. The theme for this year is ‘Put your sight in the spotlight’, and we are supporting the initiative by encouraging everyone to have a regular sight test.

Glaucoma is the name of a group of eye diseases that damage the optic nerve, responsible for transferring visual information from the eye to the brain. Damage to the optic nerve can result in sight loss and even blindness. Over 700,000 people in the UK have glaucoma, and half of them don’t know they have it. Anyone can develop the disease, though some people are at higher risk, including those with a family history of glaucoma. The disease is fairly rare below the age of 40, but the risk rises over the age of
40 and continues to increase as we get older. One in 10 people aged 75 or over are affected by glaucoma. People of African-Caribbean origin are also four times more likely to develop the disease than people of European origin.

Glaucoma can be symptomless, meaning a large percent of the peripheral vision can sometimes be lost without even noticing, due to the brain filling in any gaps in vision. For most people, the signs of glaucoma are first spotted at a routine eye test.

Glaucoma UK’s Chief Executive, Joanne Creighton, says“This Glaucoma Awareness
Week, we want people to put their sight in the spotlight by encouraging them to get their
eyes regularly tested. With an ageing population and modern technology making earlier
detection possible, more and more of us will find ourselves affected by glaucoma. If you
are living with or have recently been diagnosed with the disease, Glaucoma UK is here to
support you.”

For more information about this year’s Glaucoma Awareness Week, visit www.glaucoma.uk/glaucoma-awareness-week or join the conversation on social media using #GlaucomaAwarenessWeek.

Eye Drops and Medication During Ramadan

During the Holy month of Ramadan, the Muslim community take part in fasting. This means that from sunrise to sunset, there is no eating or drinking (not even water).

How does Ramadan affect eye medication?

During Ramadan people often stop putting in eye drops (such as Glaucoma medication, antibiotic drops and lubricant drops) as it is believed this would be breaking fast. The reason people believe this would break the fast is that drops put in the eye can sometimes seep through a passage from the eye to the back of the throat. Once someone stops taking medication or eye drops during Ramadan, often they do not start taking them again as they do not notice an impact. 

Why is this a problem?

Stopping medication can be dangerous, especially for those with the eye condition Glaucoma, as daily medication is necessary to lower pressure in the eye. For Glaucoma, lowering pressure is the only adjustable treatment which prevents loss of vision, so stopping taking prescribed medication can cause harmful effects. To prevent vision-loss getting worse with Glaucoma, drops must be used exactly as the instructions say. Daily medication also prevents infection and reduces inflammation after any surgery on the surface of the eye.

How to take eye drops without breaking fast

During Ramadan, drops can still be taken twice a day in a way that does not break fast by following these steps:

  • Morning drops should be put in during SEHRI time when fasting begins.
  • Evening drops should be put in during IFTAR time when fast is broken.
  • Press the corner of the eye near the nose for a minute after putting each drop in to prevent it seeping through to the back of the throat. This practice is called Punctal Occlusion.
  • Any eye drops after cataract surgery must be put in at the dosing time advised, but drops can still be taken without breaking fast by using Punctal Occlusion (described above).

Teaching and practicing this simple method during Ramadan is very important to prevent sight loss getting worse and other eye related issues.

This information has been produced by BAME Vision and shared with the Nystagmus Network by Visionary

Research on nystagmus and glaucoma

As previously reported here, the Research Unit for Nystagmus at Cardiff University has been looking for people with nystagmus to take part in a survey that aimed to further their understanding of the number of people with nystagmus who have also been diagnosed with glaucoma.

Nikita Thomas, of Cardiff’s School of Optometry and Vision Sciences says: “Thank you for sharing. We’ve had a fantastic response.”

The survey is now closed. Thank you to everyone who contributed to the study. We will report on progress as soon as we can.

A survey on glaucoma and nystagmus

You can support the University of Cardiff team to develop new diagnostic testing for people with nystagmus by taking their survey today.

“The Research Unit for Nystagmus at Cardiff University is looking for people with nystagmus to take part in a survey that aims to further our understanding on the number of people with nystagmus who have also been diagnosed with glaucoma.

“This survey will help us enhance our knowledge on how clinical tests can be improved to detect additional eye conditions in patients who already have nystagmus. The survey should take 5-6 minutes to complete. All answers are anonymised and will be kept confidential.”

Take part in the survey

A survey on glaucoma and nystagmus

You can support the University of Cardiff team to develop new diagnostic testing for people with nystagmus by taking their survey today.

“The Research Unit for Nystagmus at Cardiff University is looking for people with nystagmus to take part in a survey that aims to further our understanding on the number of people with nystagmus who have also been diagnosed with glaucoma.

“This survey will help us enhance our knowledge on how clinical tests can be improved to detect additional eye conditions in patients who already have nystagmus. The survey should take 5-6 minutes to complete. All answers are anonymised and will be kept confidential. “

Take part in the survey