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Supporting people living with nystagmus

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Author: Sue Ricketts

Open Day booking for Members is OPEN!


Members of the Nystagmus Network will by now have received their special link to our online booking platform and will be able to book their free adult and child places … Continue reading Open Day booking for Members is OPEN!

Posted on June 3, 2019June 3, 2019Author Sue RickettsCategories Members only, Open Day 2019

How amazing is Ben?


Once again, in the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s Ben’s story, submitted … Continue reading How amazing is Ben?

Posted on June 1, 2019May 31, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags How amazing are you?
Acquired Nystagmus Group logo.

Our new support group for Acquired Nystagmus


The Nystagmus Network is contacted more and more often by people living with Acquired Nystagmus. Experience of this condition is very different from Congenital Nystagmus in a number of ways. … Continue reading Our new support group for Acquired Nystagmus

Posted on May 31, 2019June 3, 2019Author Sue RickettsCategories Information and Support, Living with nystagmus

QAC Open Days for professionals


Queen Alexandra College A National College for People with Disabilities Information Days for Professionals These events provide you with the opportunity to meet our staff and students and discover more … Continue reading QAC Open Days for professionals

Posted on May 29, 2019May 29, 2019Author Sue RickettsCategories EventsTags QAC
Nystagmus and Driving front cover.

Let’s talk about driving at Open Day


Following the changes, earlier this year, to requirements around nystagmus and driving in the UK, we have asked a medical expert from the DVLA to come along to Open Day … Continue reading Let’s talk about driving at Open Day

Posted on May 29, 2019May 29, 2019Author Sue RickettsCategories Events, Living with nystagmus, Open Day 2019Tags driving and nystagmus, DVLA

Meet Gwyn at Open Day


Gwyn McCormack founded Positive Eye in 2008 after many years as a teacher, first in mainstream secondary school and then as a Qualified Teacher of Vision Impairments in a peripatetic … Continue reading Meet Gwyn at Open Day

Posted on May 29, 2019May 29, 2019Author Sue RickettsCategories Open Day 2019Tags Gwyn McCormack, Positive Eye
Dan Williams crouches beside his guide dog, Zodiac.

“I’m struggling to see at work”


A guest post from our Open Day 2019 keynote speaker, Daniel Williams, founder of Visualise Training and Consultancy: Losing eyesight is both challenging and difficult, scary and disconcerting. Having to … Continue reading “I’m struggling to see at work”

Posted on May 29, 2019May 29, 2019Author Sue RickettsCategories Guest posts, Information and Support, Living with nystagmusTags Daniel Williams, employment, Visualise Training and Consultancy
Dan Williams crouches beside his guide dog, Zodiac.

Referrals change lives


In a recent article published by Vision UK, Founder of Visualise Training and Consultancy, Daniel Williams, discusses the importance of referring patients from the hospital eye clinic or High Street … Continue reading Referrals change lives

Posted on May 28, 2019May 28, 2019Author Sue RickettsCategories Information and Support, Living with nystagmus, Open Day 2019Tags Daniel Williams, Visualise Training and Consultancy

Congratulations, Tim!


Nystagmus Network trustee, Tim Cuddeford, ran the London Vitality 10 k on Bank Holiday Monday to raise funds for the charity. Tim said: ” “I did it in 00:58:48, not … Continue reading Congratulations, Tim!

Posted on May 28, 2019May 28, 2019Author Sue RickettsCategories Fundraising, PostsTags London Vitality 10k
Nystagmus Awareness Day 20 June logo.

Nystagmus Awareness Day event in Manchester


Manchester Royal Eye hospital are holding a Nystagmus Awareness Day afternoon filled with fun activities for children and young people andinformation for parents, carers and families. The event will take … Continue reading Nystagmus Awareness Day event in Manchester

Posted on May 24, 2019May 24, 2019Author Sue RickettsCategories Events, Nystagmus Awareness DayTags Manchester

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