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Author: Sue Ricketts

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Parent Power – our new project, funded by the Community Fund


The Nystagmus Network is delighted to announce that we have been awarded funding by the Community Fund for a brand new project, called Parent Power. The aim of the project … Continue reading Parent Power – our new project, funded by the Community Fund

Posted on June 11, 2019June 11, 2019Author Sue RickettsCategories Charity highlights, Information and SupportTags Community Fund, Parent Power

Our Manchester Event


Manchester Royal Eye Hospital is holding a Nystagmus Awarenessafternoon filled with fun activities for children and young people, as well asinformation for parents, carers and families of children with nystagmus.Guests … Continue reading Our Manchester Event

Posted on June 10, 2019June 10, 2019Author Sue RickettsCategories Events, Nystagmus Awareness DayTags Manchester nystagmus network
Roger stands in his garden.

How amazing is Roger?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s a story we just had … Continue reading How amazing is Roger?

Posted on June 10, 2019June 21, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?, nystagmus heroes

How amazing is Poppy?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Poppy has ocular albinism, nystagmus, astigmatism. … Continue reading How amazing is Poppy?

Posted on June 7, 2019June 6, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Nabin?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Nabin has had nystagmus since my … Continue reading How amazing is Nabin?

Posted on June 6, 2019June 6, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

A guide to a baby’s eyes


Often it’s a parent, close friend or family member who first discovers that there’s something different about a baby’s eyes. It could be nystagmus. Do you know the milestones in … Continue reading A guide to a baby’s eyes

Posted on June 5, 2019June 5, 2019Author Sue RickettsCategories Information and SupportTags baby, Look After Your Eyes

How amazing is Hanna?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Today we introduce our friend, Hanna … Continue reading How amazing is Hanna?

Posted on June 5, 2019June 5, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, Nystagmus heroes, PostsTags amazing nystagmus success stories, How amazing are you?

Sight Loss Councils survey


A guest post: Sight Loss Councils have a vision for change – we want blind and partially sighted people to have access to goods and services at the same level … Continue reading Sight Loss Councils survey

Posted on June 4, 2019June 4, 2019Author Sue RickettsCategories PostsTags Sight Loss Councils, survey

How amazing is Calum?


Once again, in the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s Calum’s story, by … Continue reading How amazing is Calum?

Posted on June 4, 2019June 4, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Caitlin?


Once again, in the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s Caitlin’s story: Despite … Continue reading How amazing is Caitlin?

Posted on June 3, 2019June 3, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

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