Nystagmus Network trustees Claire Brinn and Vicky Pitman and Vicky’s husband, Richard finally completed their abseil for nystagmus research on Sunday, 28 October. They scaled down the ArcelorMittal Orbit at … Continue reading True dedication!
Author: Sue Ricketts
Make us smile – even more!
Thank you to everyone who’s already signed up with AmazonSmile to raise a small donation for the Nystagmus Network every time you order something from Amazon. For a short time … Continue reading Make us smile – even more!
Our Annual Report 2017 is published
Of interest to all of our stakeholders, subscribed members, supporters, fundraisers and donors, our Annual Report for 2017 is now published on the Charities Commission website and available to read. … Continue reading Our Annual Report 2017 is published
They did it – at last!
The unpredictable British weather finally came good for our intrepid (postponed) abseilers on Sunday 21 September, when Clare A, Glen and Matt finally completed their abseil from the viewing platform … Continue reading They did it – at last!
Congratulations, Marsha
Marsha De Cordova MP, Shadow Minister for Disabilities and MP for Battersea, features in the Shaw Trust’s Disability Power 100 2018. This is well deserved recognition for a person who … Continue reading Congratulations, Marsha
Nerves of steel!
Four of our six remaining Nystagmus Network abseilers will finally (fingers crossed!) make their leap for nystagmus research this Sunday, 21 October, from the viewing platform at the top of … Continue reading Nerves of steel!
Clare did it for nystagmus and for Jessica
Clare ran the Royal Parks Half Marathon on Sunday 14 October to raise money for the Nystagmus Network in honour of Jessica, who was born with the condition. The Royal … Continue reading Clare did it for nystagmus and for Jessica
Walk Eye to Eye for nystagmus research
Supporters of the Nystagmus Network and anyone keen to raise money for nystagmus research at Moorfields Eye Hospital and University College, London can now sign up to walk Eye to … Continue reading Walk Eye to Eye for nystagmus research
Nystagmus Patient Information Day
The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November. Moorfields Eye Hospital is holding an information day for … Continue reading Nystagmus Patient Information Day
UK Nystagmus Research Meeting takes place
Researchers and clinicians representing nystagmus centres of excellence from Cardiff, London, Plymouth, Sheffield and Southampton gathered in Birmingham on Friday 28 September as guests of the Nystagmus Network ahead of … Continue reading UK Nystagmus Research Meeting takes place