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Author: Sue Ricketts

Congratulations, Marsha


Marsha De Cordova MP, Shadow Minister for Disabilities and MP for Battersea, features in the Shaw Trust’s Disability Power 100 2018. This is well deserved recognition for a person who … Continue reading Congratulations, Marsha

Posted on October 22, 2018Author Sue RickettsCategories Living with nystagmusTags Disability Power 100 2018, Marsha de Cordova, Open Day

Nerves of steel!


Four of our six remaining Nystagmus Network abseilers will finally (fingers crossed!) make their leap for nystagmus research this Sunday, 21 October, from the viewing platform at the top of … Continue reading Nerves of steel!

Posted on October 17, 2018October 17, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags abseil, Moorfields Eye Hospital, nystagmus research, University College London
2 runners wearing Nystagmus Network show their medals after comleting the Royal Parks Half Marathon

Clare did it for nystagmus and for Jessica


Clare ran the Royal Parks Half Marathon on Sunday 14 October to raise money for the Nystagmus Network in honour of Jessica, who was born with the condition. The Royal … Continue reading Clare did it for nystagmus and for Jessica

Posted on October 15, 2018Author Sue RickettsCategories FundraisingTags Royal Parks Half Marathon, sponsored run

Walk Eye to Eye for nystagmus research


Supporters of the Nystagmus Network and anyone keen to raise money for nystagmus research at Moorfields Eye Hospital and University College, London can now sign up to walk Eye to … Continue reading Walk Eye to Eye for nystagmus research

Posted on October 15, 2018October 16, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags Eye2Eye, Moorfields Eye Hospital, sponsored walk, University College London

Nystagmus Patient Information Day


The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November. Moorfields Eye Hospital is holding an information day for … Continue reading Nystagmus Patient Information Day

Posted on October 15, 2018Author Sue RickettsCategories Events, Information and Support, Living with nystagmusTags adults, Moorfields Eye Hospital, nystagmus, patient information
A Nystagmus Network research workshop

UK Nystagmus Research Meeting takes place


Researchers and clinicians representing nystagmus centres of excellence from Cardiff, London, Plymouth, Sheffield and Southampton gathered in Birmingham on Friday 28 September as guests of the Nystagmus Network ahead of … Continue reading UK Nystagmus Research Meeting takes place

Posted on October 3, 2018October 3, 2018Author Sue RickettsCategories Charity highlights, researchTags Fight for Sight, grants, nystagmus research

Design our Christmas card


At Open Day we announced our competition for children to design the Nystagmus Network 2018 Christmas card. Cards will be available to purchase from early November and will help us … Continue reading Design our Christmas card

Posted on October 3, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags Christmas card competition, nystagmus network

Join our lottery!


Would you like to be in with the chance to win £25,000 for just £1 per week? If so, please sign up for the Nystagmus Network weather lottery. All profits … Continue reading Join our lottery!

Posted on October 1, 2018October 3, 2018Author Sue RickettsCategories FundraisingTags Lottery

The Eye2Eye walk for nystagmus research


In partnership with Moorfields Eye Charity, the Nystagmus Network is recruiting a team to take part in the Eye2Eye walk from the London Eye to the iconic eye on the … Continue reading The Eye2Eye walk for nystagmus research

Posted on October 1, 2018October 3, 2018Author Sue RickettsCategories Events, FundraisingTags Moorfields Eye Hospital, nystagmus research, sponsored walk, University College London

Thank you! You were amazing!


Nystagmus Network trustees and staff would like to say a huge thank you to everyone who helped make Open Day 2018 such an amazing day. Thank you to all our … Continue reading Thank you! You were amazing!

Posted on October 1, 2018October 3, 2018Author Sue RickettsCategories Charity highlights, Open Day 2018, Thank yousTags amazing

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