The Nystagmus Network’s newest trustee, Dr Harshal Kubavat has a young child with nystagmus. Like many parents, he had never heard of nystagmus before. After supporting the charity’s work in the research space as a volunteer for some time, Harsh joined us as a trustee in November 2021. He is now a stalwart of the … Continue reading Thank you, Harshal
Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus community in all its diversity or lived experience of nystagmus or another form of visual impairment? If so, please consider becoming a trustee of the Nystagmus Network, a … Continue reading Trustee vacancies
Trustees play an essential role in the running of the Nystagmus Network. Whilst it is not a role to be taken on lightly and may be demanding of time and skills, especially within a small organisation like ours, it can be rewarding for many reasons. Meet our trustees here. The charity’s trustees share ultimate responsibility … Continue reading Could you be a Nystagmus Network trustee?
Do you have the digital know how to take the Nystagmus Network up to the next level? The Nystagmus Network is keen to recruit a new trustee with the right skills set. If you have a connection with nystagmus, have digital experience and expertise, could easily travel to London for quarterly meetings and would be interested in … Continue reading Are you a digital champion?
Without the dedication of just one woman, Vivien Jones, our Founder and Honorary President, the Nystagmus Network would not exist. Vivien is supported by a strong team of Trustees, all volunteers. Watch Vivien’s story here. Find out more about our trustees, here.
Nystagmus Network trustees Claire Brinn and Vicky Pitman and Vicky’s husband, Richard finally completed their abseil for nystagmus research on Sunday, 28 October. They scaled down the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. The final 3 of our fabulous team of 10 abseilers finally took their leap for nystagmus, following postponements due to … Continue reading True dedication!
Nystagmus Network trustees Peter Greenwood and Sam Jones completed the London Vitality 10k on Bank Holiday Monday and raised over £1,000 between them for the charity. Nystagmus Network Chairman, Richard Wilson OBE, added his thanks and congratulations to both runners and commented: “Brilliant dedication to a great cause.”