We are delighted to announce that David Katz, the internationally acclaimed photographer, will be joining us as our special guest speaker at our annual Open Day on 29 September. David … Continue reading David Katz – our special guest speaker at Open Day 2018
We are delighted to announce that we shall be joined on Open Day this year by Shadow Minister for Disabilities, Marsha de Cordova. Marsha has nystagmus and is severely sight … Continue reading Marsha de Cordova MP – our Open Day keynote speaker
We started national and international Nystagmus Awareness Day, also known as Wobbly Wednesday, back in 2013. But every Wednesday is awareness day on our Facebook page. This means you can … Continue reading Every Wednesday is Nystagmus Awareness Day on Facebook
The Nystagmus Network is delighted to post some exciting news. In 2018 we are declaring 20 June the new permanent date for Nystagmus Awareness Day. Since 2013, we have celebrated … Continue reading Nystagmus Awareness Day 2018
Chairman of the Nystagmus Network, Richard Wilson, formally received his OBE from Her Majesty The Queen at Windsor Castle on Friday. During his brief private conversation with Her Majesty, Richard … Continue reading Richard receives his OBE from Her Majesty the Queen
Whether or not people with nystagmus can drive is probably the most frequently asked question the charity receives. Because nystagmus is such a complex condition and affects everyone differently, there … Continue reading Nystagmus Network launches new publication on nystagmus and driving
Nystagmus Network and Fight for Sight have partnered to fund research aimed at the early detection of nystagmus and improve the quality of life of those with nystagmus Fight for Sight, the UK’s … Continue reading Nystagmus Network and Fight for Sight fund two new nystagmus research projects
The Nystagmus Network is delighted and proud to announce that our charity Chairman, Richard Wilson, has received an OBE in Her Majesty the Queen’s New Year’s Honours list today. Richard … Continue reading Richard receives New Year’s honour
The Nystagmus Network was delighted to have Rory Cobb with us at Open Day 2017 to lead off the parents’ conference with an informative and inspiring presentation. Rory has a … Continue reading Making the most of education – Rory Cobb
The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each … Continue reading Nystagmus research update from Southampton
