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Supporting people living with nystagmus

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Category: Fundraising

Ben’s a true nystagmus hero


Ben is doing a ‘wobbly cycle ride’ this Saturday, 4 May. He’ll be riding 35 miles for his brother, who has nystagmus, to raise money for the Nystagmus Network and … Continue reading Ben’s a true nystagmus hero

Posted on May 2, 2019May 2, 2019Author Sue RickettsCategories Fundraising, Nystagmus heroesTags Duke of Edinburgh award

Benjy’s cake sale


A big thank you to everyone at St John the Baptist junior school in Hampton Wick (Richmond upon Thames) for nominating Nystagmus Network as their chosen charity for their recent … Continue reading Benjy’s cake sale

Posted on April 30, 2019April 30, 2019Author Sue RickettsCategories Fundraising, Thank yous

London marathon 2020 ballot open NOW


If you would like the opportunity to run the London marathon 2020 for the Nystagmus Network, please enter the ballot TODAY. Please click here for details. Good luck!

Posted on April 29, 2019April 29, 2019Author Sue RickettsCategories Fundraising

Our fabulous Baker boy!


Steve Baker, who’s Twitter handle is, appropriately, @fabbakerboy, will be running the London marathon this Sunday for nystagmus research at Moorfields. Not content with just one marathon, Steve, who has … Continue reading Our fabulous Baker boy!

Posted on April 26, 2019April 26, 2019Author Sue RickettsCategories Charity highlights, FundraisingTags London marathon 2019, Moofields, nystagmus research
Sam Jones

Get well soon, Sam


Sadly Nystagmus Network trustee and London marathon runner, Sam Jones has been forced to pull out of Sunday’s run due to a knee injury. Sam was all geared up to … Continue reading Get well soon, Sam

Posted on April 26, 2019April 26, 2019Author Sue RickettsCategories Charity highlights, FundraisingTags London marathon 2019

Our biggest ever investment in nystagmus research


Thanks to the generosity of our members, fundraisers and supporters and our longstanding partnership with Fight for Sight, the UK’s leading eye research charity, the Nystagmus Network is delighted to … Continue reading Our biggest ever investment in nystagmus research

Posted on April 24, 2019March 10, 2020Author Sue RickettsCategories Charity highlights, Fundraising, researchTags Fight for Sight
In memorium template.

Celebrating our loved ones


When a loved one dies, family and friends left behind need the chance to say goodbye, honour their memory and look for meaning in the death by remembering their achievements … Continue reading Celebrating our loved ones

Posted on April 12, 2019April 12, 2019Author Sue RickettsCategories Fundraising, Legacies and gifts in wills

Introducing Neill


Neill Mison is an IT consultant who has recently rediscovered his love of and talent for painting and drawing. Neill now styles himself as ‘the visually impaired artist’ and is … Continue reading Introducing Neill

Posted on April 2, 2019April 2, 2019Author Sue RickettsCategories Fundraising, Living with nystagmus, Nystagmus heroesTags Greater Manchester marathon, Neill Mison, visually impaired artist
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April deals on our Ultrachallenges


Push Yourself Further – 10 great events in 2019 Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing adventures? Or even a … Continue reading April deals on our Ultrachallenges

Posted on March 29, 2019March 29, 2019Author Sue RickettsCategories Fundraising, PostsTags Ultra Challenges

parkrun for Nystagmus Awareness Day


This year for Nystagmus Awareness Day and ‘wobbly week’ the Nystagmus Network is encouraging everyone to take part in parkrun, to get out into your local park and walk or … Continue reading parkrun for Nystagmus Awareness Day

Posted on March 19, 2019June 5, 2019Author Sue RickettsCategories Fundraising, Nystagmus Awareness DayTags awareness, parkrun, wobbly week

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