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Category: Fundraising

They did it!


We’ve just heard that James and his little brother, Thomas, have successfully completed their summer fundraising challenge to raise a phenomenal £677 for two charities. James (8) and Thomas (5) … Continue reading They did it!

Posted on August 31, 2018Author Sue RickettsCategories FundraisingTags chromosome 18q-, nystagmus

Glen’s taking the abseil challenge. Could you?


Glen is a member of the Nystagmus Network and a true friend of the charity. We were privileged to meet him last year when he led a workshop at Open … Continue reading Glen’s taking the abseil challenge. Could you?

Posted on August 17, 2018Author Sue RickettsCategories FundraisingTags abseil, fundraising, Moorfields Eye Hospital, nystagmus, research

Claire’s taking the leap for nystagmus. Want to join her?


Introducing Claire, the next member of Team Nystagmus Network Abseil. Claire is a keen rock climber, so abseiling her way down the ArcelorMittal Orbit is going to be a walk … Continue reading Claire’s taking the leap for nystagmus. Want to join her?

Posted on August 17, 2018Author Sue RickettsCategories FundraisingTags abseil, fundraising, Moorfields Eye Hospital, nystagmus, research

Vikki and Tom – our first abseilers


Vikki and her husband, Tom, were the very first to sign up to abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. … Continue reading Vikki and Tom – our first abseilers

Posted on August 1, 2018Author Sue RickettsCategories FundraisingTags abseil, Moorfields Eye Hospital, nystagmus research, University College London
Simon in Nystagmus Network T shirt.

Well done, Simon! He did it!


Simon jumped out of a plane for the Nystagmus Network this morning and has raised over £1,000 for the charity! Fresh back from a family holiday, Simon took to the … Continue reading Well done, Simon! He did it!

Posted on July 26, 2018July 26, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags bucket list, nystagmus in the open, parachute jump, sky diving

Well done, Harry!


Harry and his family raised over £1,000 for the Nystagmus Network last weekend by taking part in a sponsored fun triathlon. What a phenomenal achievement! Well done, Harry! To sponsor … Continue reading Well done, Harry!

Posted on July 25, 2018July 26, 2018Author Sue RickettsCategories Fundraising, Thank yousTags bucket list, summer challenge

James and Thomas’s Summer Challenge


James and his little brother, Thomas, are taking on a very special challenge this summer to raise money for two charities very close to the family’s heart. James (8) and … Continue reading James and Thomas’s Summer Challenge

Posted on July 25, 2018Author Sue RickettsCategories FundraisingTags chromosome 18q-, fundraising, nystagmus, nystagmus network

Want to abseil at the Queen Elizabeth Olympic Park?


Could you take the plunge and abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park? It’s an exhilarating descent to … Continue reading Want to abseil at the Queen Elizabeth Olympic Park?

Posted on June 25, 2018June 26, 2018Author Sue RickettsCategories FundraisingTags abseil, Moorfields Eye Hospital, nystagmus research, University College London

Sign up to Easy Fundraising for free donations


Every time you shop online you could be raising a donation for the Nystagmus Network, absolutely free. All you need to do is visit the Easy Fundraising website and click … Continue reading Sign up to Easy Fundraising for free donations

Posted on June 25, 2018Author Sue RickettsCategories FundraisingTags Easy Fundraising

How amazing is Mehak?


Growing up with nystagmus and albinism, I hated school and social interaction. I was always self-conscious and easily embarrassed that my weak eyesight, poor balance and hypersensitivity to sunlight made … Continue reading How amazing is Mehak?

Posted on June 6, 2018Author Sue RickettsCategories Fundraising, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, ZING

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