Thanks to John Gray and his Dorset golf club for their generosity, the Nystagmus Network will be able to continue to invest in research. John had no hesitation in nominating the Nystagmus Network as his captain’s charity of the year when he took up the reins as captain of Crane Valley Golf Club in 2017. … Continue reading Thank you John and Crane Valley GC
We’re celebrating today the huge achievements of Lucie Wood and her family in support of Wobbly Wednesday 2017 (national and international Nystagmus Awareness Day) and the #nystagmusbigswim. Lucie’s daughter has nystagmus. She, her sister and their 2 cousins decided to take part in the #nystagmusbigswim. When they asked their swimming club, Broadway ASC in Oldham, if … Continue reading Broadway swimming club joins #nystagmusbigswim
If you’re looking for a challenge and would like to help this charity raise funds, why not sign up for one of our free places in the London Vitality 10k on 28 May? All we ask is that you set up a Justgiving page for your sponsors, agree to raise at least £100 for the … Continue reading Want to run the London Vitality 10k for the Nystagmus Network?
Thank you for choosing to apply to the Nystagmus Network for one of our London Marathon places. To do so, please complete the short form below. [contact-form-7 id=”5811″ title=”London Marathon 2017″]
This week the video blog at the Nystagmus Network features our very own Sue! The video is her interview with Peterborough Community Radio which is hosted by one of our very loyal and long standing supporters Tim Heywood. Sue and Tim discuss the Nystagmus Network, nystagmus and Wobbly Wednesday.
Our latest video for our blog introduces Wobbly Wednesday, the annual awareness raising day for nystagmus! The video features some of our trustees, including our founder and chairman explaining why the Nystagmus Network is so important.
Jon and Rachael Sweeney organised a charity rock and roll night at their local social club on Saturday 29 October. Their son, Oliver, has nystagmus. They wanted to raise money for the Nystagmus Network to give something back after the support and information they received. Jon says: “I had never heard of Nystagmus until our … Continue reading Charity rock and roll night
On Saturday 29 October young Research Orthoptist, Daniel Osborne, kicked off a whole raft of Wobbly Wednesday activities at the Southampton Eye Unit in real style by riding a 12 mile route around the town on his unicycle. Fuelled by dates, flap jack, fed to him at regular intervals by his stalwart outrider, Kathryn Greenhalgh, … Continue reading A very wobbly unicycle ride
Our video this week focuses on Wobbly Wednesday and why your support is so important! It helps us raise awareness of nystagmus and make it the topic of discussion for the day.
Our latest video blog features an interview by our very own Sue with two of the charity’s fundraisers! Gavin and Paula Birch recently held a fun day and football match for the Nystagmus Network where they were able to raise funds and awareness of the condition. Their daughter Freya was diagnosed with nystagmus when she … Continue reading Fundraising for the Nystagmus Network