Why we need a pathway Getting a diagnosis of nystagmus for a small baby is an anxious time if you’ve never heard of the condition before. It’s even harder if … Continue reading The Nystagmus Care Pathway
Category: Information and Support
Nystagmus Network wins £1,000 Movement for Good award
Nystagmus Network wins £1,000 Movement for Good award The Nystagmus Network has won a £1,000 Movement for Good award from Ecclesiastical Insurance Group thanks to nominations from the public. The … Continue reading Nystagmus Network wins £1,000 Movement for Good award
Do you use your local offer?
Since 2014 all UK local authorities are required to put information about services for families with disabled children in a special web page called the Local Offer. Have you found … Continue reading Do you use your local offer?
Nystagmus news for eye care professionals
The Nystagmus Network now produces a digital newsletter for Dispensing Opticians and Optometrists. The first edition has just been published, bringing nystagmus news, stories and information directly to high street … Continue reading Nystagmus news for eye care professionals
Eye Drops and Medication During Ramadan
During the Holy month of Ramadan, the Muslim community take part in fasting. This means that from sunrise to sunset, there is no eating or drinking (not even water). How … Continue reading Eye Drops and Medication During Ramadan
Sue’s at VIEW
The annual VIEW conference for QTVIs (Qualified Teachers of Visually Impaired children and young people) is taking place last week and this – virtually. The Nystagmus Network attends every year. … Continue reading Sue’s at VIEW
What is nystagmus?
For a back to basics, plain English guide to childhood nystagmus, visit the new Gene Vision website. The Nystagmus Network contributed to the content to make sure that people diagnosed … Continue reading What is nystagmus?
Notes from the February Forum for adults living with Acquired Nystagmus and Oscillopsia
Thank you to everyone who joined us for the Nystagmus Network February Forum for Adults living with Acquired Nystagmus and Oscillopsia. Patsy’s story, a case study of AN and Oscillopsia … Continue reading Notes from the February Forum for adults living with Acquired Nystagmus and Oscillopsia
Notes from the February Forum for adults with congenital nystagmus
Thank you to everyone who joined us for the Nystagmus Network February Forum for Adults living with Congenital Nystagmus. ECLOs Ian, our Information Support Officer made sure that everyone knew … Continue reading Notes from the February Forum for adults with congenital nystagmus
Notes from the January forum for adults living with CN
It was so wonderful to see and hear people exchanging experiences and tips on Tuesday evening, 26 January (morning for those who joined us from New Zealand!). Here are just … Continue reading Notes from the January forum for adults living with CN