Once again, in the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s Calum’s story, by … Continue reading How amazing is Calum?
Category: Living with nystagmus
How amazing is Caitlin?
Once again, in the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s Caitlin’s story: Despite … Continue reading How amazing is Caitlin?
How amazing is Ben?
Once again, in the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s Ben’s story, submitted … Continue reading How amazing is Ben?
Our new support group for Acquired Nystagmus
The Nystagmus Network is contacted more and more often by people living with Acquired Nystagmus. Experience of this condition is very different from Congenital Nystagmus in a number of ways. … Continue reading Our new support group for Acquired Nystagmus
Let’s talk about driving at Open Day
Following the changes, earlier this year, to requirements around nystagmus and driving in the UK, we have asked a medical expert from the DVLA to come along to Open Day … Continue reading Let’s talk about driving at Open Day
“I’m struggling to see at work”
A guest post from our Open Day 2019 keynote speaker, Daniel Williams, founder of Visualise Training and Consultancy: Losing eyesight is both challenging and difficult, scary and disconcerting. Having to … Continue reading “I’m struggling to see at work”
Referrals change lives
In a recent article published by Vision UK, Founder of Visualise Training and Consultancy, Daniel Williams, discusses the importance of referring patients from the hospital eye clinic or High Street … Continue reading Referrals change lives
Acquired nystagmus, MS and driving
An article recently published online by Everyday Health, discusses the effects of acquired nystagmus on an individual’s ability to drive. The author is an American citizen, living in New York … Continue reading Acquired nystagmus, MS and driving
A new RNIB guide to outdoor play
The Royal National Institute for the Blind (RNIB) has recently released a new guide, Messy and Muddy, which explores outdoor play for children living with sight loss. The new guide … Continue reading A new RNIB guide to outdoor play
Benefits rates updates
We are grateful to Neil at Social Welfare Training Ltd for keeping us updated with UK benefits rates. For people living with nystagmus or supporting a child or young person … Continue reading Benefits rates updates