Our latest video for our blog introduces Wobbly Wednesday, the annual awareness raising day for nystagmus! The video features some of our trustees, including our founder and chairman explaining why … Continue reading Why is Wobbly Wednesday so important? Watch and find out!
Our video this week focuses on Wobbly Wednesday and why your support is so important! It helps us raise awareness of nystagmus and make it the topic of discussion for … Continue reading Wobbly Wednesday – show your support!
Our son Joshua was born with oculo-cutaneous albinism in 2003. It was a surprise to both our families as no one on either side had any recollection of anyone in … Continue reading Do you want to ski like Josh?
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This week the video blog at the Nystagmus Network features the amazing Josh! Â Josh is a keen skier who loves to take part in ski competitions. However, he was … Continue reading No limits
I made my first contribution to the Nystagmus Network Focus newsletter after much parental cajoling and days, weeks, months, if not years, of adolescent procrastination, in the mid-1990s. To save … Continue reading A mum with nystagmus shares her story
Our latest video blog features an interview with one of our young members! In the video Tom talks about starting his new class at school and how he is a … Continue reading Tom and his new class at school
Our latest video blog features an interview by our very own Sue with two of the charity’s fundraisers! Gavin and Paula Birch recently held a fun day and football match … Continue reading Fundraising for the Nystagmus Network
When your child has nystagmus there might be slightly more to think about before you wave goodbye at the school gates than new shoes and homework diaries. Especially in the … Continue reading Nystagmus and the new school term – by Elisheva Sokolic
Our third video blog has been recorded by Steve McKay who is a trustee at the Nystagmus Network! During the video Steve talks about how he took up photography and … Continue reading Nystagmus and photography
