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Category: Posts

How amazing is Nabin?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Nabin has had nystagmus since my … Continue reading How amazing is Nabin?

Posted on June 6, 2019June 6, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Hanna?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Today we introduce our friend, Hanna … Continue reading How amazing is Hanna?

Posted on June 5, 2019June 5, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, Nystagmus heroes, PostsTags amazing nystagmus success stories, How amazing are you?

Sight Loss Councils survey


A guest post: Sight Loss Councils have a vision for change – we want blind and partially sighted people to have access to goods and services at the same level … Continue reading Sight Loss Councils survey

Posted on June 4, 2019June 4, 2019Author Sue RickettsCategories PostsTags Sight Loss Councils, survey

How amazing is Calum?


Once again, in the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s Calum’s story, by … Continue reading How amazing is Calum?

Posted on June 4, 2019June 4, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Caitlin?


Once again, in the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s Caitlin’s story: Despite … Continue reading How amazing is Caitlin?

Posted on June 3, 2019June 3, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

Congratulations, Tim!


Nystagmus Network trustee, Tim Cuddeford, ran the London Vitality 10 k on Bank Holiday Monday to raise funds for the charity. Tim said: ” “I did it in 00:58:48, not … Continue reading Congratulations, Tim!

Posted on May 28, 2019May 28, 2019Author Sue RickettsCategories Fundraising, PostsTags London Vitality 10k

ANUK conference 2019


Conference 2019 Learn about aniridia and related conditions from each other, and professionals in medical and related fields. Find out how those affected by aniridia deal with it every day. … Continue reading ANUK conference 2019

Posted on May 16, 2019May 16, 2019Author Sue RickettsCategories Events, Guest posts, PostsTags aniridia, ANUK

Pizza in Paris


A report by John Sanders, former Nystagmus Network UK chairman and development manager, on the recent Open Day of the French Nystagmus Network Nanterre, Paris, France, Saturday, April 6, 2019 … Continue reading Pizza in Paris

Posted on May 2, 2019May 2, 2019Author Sue RickettsCategories PostsTags Association Mouvement Nystagmus, French Nystagmus Network

Daniel’s a man on a mission


Man on a Mission with Low Vision, visually impaired entrepreneur Daniel Williams is working to raise awareness of the value to business of meeting the needs of visually impaired customers … Continue reading Daniel’s a man on a mission

Posted on April 30, 2019April 30, 2019Author Sue RickettsCategories Information and Support, Open Day 2019, PostsTags Daniel Williams, Visualise Training and Consultancy
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April deals on our Ultrachallenges


Push Yourself Further – 10 great events in 2019 Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing adventures? Or even a … Continue reading April deals on our Ultrachallenges

Posted on March 29, 2019March 29, 2019Author Sue RickettsCategories Fundraising, PostsTags Ultra Challenges

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