The Nystagmus Network team will be celebrating Nystagmus Awareness Day 2026 in style with an in-person event in the heart of Leicester on Saturday 20 June. Among our guests will … Continue reading Join us in Leicester for Nystagmus Awareness Day
Tag: nystagmus heroes
Thank you, Kim!
When Kim applied to the Nystagmus Network for a place in the TCS London Marathon 2026, we didn’t hesitate to award her our charity ballot place. Kim’s daughter, Maya, has … Continue reading Thank you, Kim!
Congratulations Ryan!
After unexpectedly winning a place for the TCS London Marathon 2026 in the public ballot, Ryan became a (very) accidental first time marathon trainee. He set himself the ‘couch to … Continue reading Congratulations Ryan!
Sue is Cause4’s Charity Leader of the Month!
Welcome to August’s Pick of the Month! Cause4 are excited to feature individuals who are making a real impact in the charity world. From creative social innovators to tireless charity … Continue reading Sue is Cause4’s Charity Leader of the Month!
Mike’s Southampton family send off
As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off
Thank you, Richard
We are sorry to share the sad news that Richard Wilson, Chairman of the Nystagmus Network from 2011 to 2019, passed away over the Easter weekend. Richard’s contribution to the … Continue reading Thank you, Richard
Nystagmus Champions of 2022
A Nystagmus Champion is someone who goes above and beyond to raise awareness of the condition, to raise funds or generally make life better for people living with nystagmus. The … Continue reading Nystagmus Champions of 2022
Leicester optician puts nystagmus in Focus
Having nystagmus hasn’t stopped Leicester’s Khalil Musani from forging a career in optics and helping others look after their eyes When Khalil secured a Saturday job at a Leicester opticians … Continue reading Leicester optician puts nystagmus in Focus
Volunteer for us!
The Nystagmus Network is a little charity with very big ideas. Do you want to be part of our exciting journey? If you have the skills and time to give … Continue reading Volunteer for us!
Hanni’s nystagmus story
Whilst the trustees oversee strategy and guide the direction of the charity, overall management and day-to-day operations are in the capable hands of our small dedicated staff team. Hanni is … Continue reading Hanni’s nystagmus story