Wyatt has always had this positive outlook. He is determined, smart, and gives EVERYTHING his all! When he was 4 months old he was diagnosed with Nystagmus. We as parents were told that he would never ride a bike, play sports, or even read a book. Everything he would do would be a challenge for … Continue reading How amazing is Wyatt?
Children’s author, Tim Pearce who modestly describes himself as ‘the favourite children’s author you’ve never heard of’ joined the Nystagmus Network earlier this week to lead a fun and inspiring story writing workshop for children. Tim began by sharing his journey to publishing his first book ‘Secret Agent Striker’ and then gave us a sneaky … Continue reading Thank you, Tim
For Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. An amazing effort! Thank you so much! At Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser (remember those?) … Continue reading Thank you, Emma
The voice of Nystagmus Network member, acclaimed soprano and Open Day 2020 keynote speaker, Joanne Roughton-Arnold features in the inspirational documentary, Rising Phoenix, a Netflix production charting the history of the Paralympic Games through the personal stories of some of the sports stars themselves. Described by Daniel Pemberton, the film’s musical director as “an incredibly … Continue reading Joanne sings for the Rising Phoenix
Calling all nystagmus heroes … You, your family and friends are warmly invited to take part in The 2.6 Challenge from Sunday 26 April to help to save the UK’s charities. The Covid-19 pandemic has had a devastating effect on charities, with the cancellation of 1,000s of events and the loss of £billions in fundraising … Continue reading Join the Nystagmus Network for The 2.6 Challenge
The Nystagmus Network would like to say a huge thank you to Shirley Pennington, her family, friends and local Shropshire community. Shirley recently organised an auction of promises to raise money for the Nystagmus Network. Shirley’s event raised a phenomenal £16,625! The auction was in part a celebration of Shirley’s son, James’s marriage to Rhiann … Continue reading Thank you, Shirley
In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s a story we just had to share. When Roger contacted us he began by saying “I have enjoyed Nystagmus for nearly 80 years.” We were hooked. Roger went on to … Continue reading How amazing is Roger?