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Category: Posts

Mike wears his Nystagmus Network T short and smiles for the camera

Trekking through Middle Earth for nystagmus research


Follow Mike’s wiggly progress on his Facebook page, here and donate to his Nystagmus Network fundraising page, here. A sight-impaired young Englishman, Mike Larcombe, is preparing to trek across New … Continue reading Trekking through Middle Earth for nystagmus research

Posted on November 27, 2019November 27, 2019Author Sue RickettsCategories Events, Fundraising, Posts, researchTags Mike Larcombe, New Zealand, Walk for Wiggly Eyes

Would your child like a German pen friend?


Thanks to our partnership with the German Nystagmus Network, we can now offer children and young people, who have nystagmus, living in the UK, the chance to make friends with … Continue reading Would your child like a German pen friend?

Posted on October 3, 2019October 3, 2019Author Sue RickettsCategories PostsTags German Nystagmus Network, pen friends

13% of MS patients have acquired nystagmus


In a report presented this summer, 15 of a sample of 116 patients with Multiple Sclerosis were found to have Acquired Nystagmus. Ocular manifestations often present first in multiple sclerosis … Continue reading 13% of MS patients have acquired nystagmus

Posted on September 9, 2019September 9, 2019Author Sue RickettsCategories Posts
Trustees smile at the camera.

Are you a digital champion?


Do you have the digital know how to take the Nystagmus Network up to the next level? The Nystagmus Network is keen to recruit a new trustee with the right skills set. … Continue reading Are you a digital champion?

Posted on August 9, 2019August 9, 2019Author Sue RickettsCategories PostsTags digital champion, Opportunities with us, trustees

And the winner is …


The results are in from our Facebook and Twitter polls and we can finally announce the name of our fabulous ‘Nystagmus is …’ competition winner – drum roll, please … … Continue reading And the winner is …

Posted on August 5, 2019August 5, 2019Author Sue RickettsCategories Posts
Mike wears his Nystagmus Network T short and smiles for the camera

Mike’s wiggly walk – video update


Mike has nystagmus and so does his young nephew, Archie. Later this year and well into 2020, Mike will be walking the length of New Zealand to help find a … Continue reading Mike’s wiggly walk – video update

Posted on July 24, 2019July 24, 2019Author Sue RickettsCategories Fundraising, PostsTags Walk for Wiggly Eyes

We publish our annual review 2018


Trustees are pleased to announce that the 2018 Annual Review of the Nystagmus Network is now published on the Charities Commission website. Chairman of the charity, Richard Wilson OBE, says: … Continue reading We publish our annual review 2018

Posted on June 24, 2019June 24, 2019Author Sue RickettsCategories PostsTags Annual review 2018

How amazing is Sonny-John?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” On Nystagmus Awareness Day itself a … Continue reading How amazing is Sonny-John?

Posted on June 20, 2019June 20, 2019Author Sue RickettsCategories Fundraising, Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Jane?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Jane believes that having a sense … Continue reading How amazing is Jane?

Posted on June 19, 2019June 19, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Alfie?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” To his parents, Alfie truly is … Continue reading How amazing is Alfie?

Posted on June 18, 2019June 18, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

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