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Category: Posts

And the winner is …


The results are in from our Facebook and Twitter polls and we can finally announce the name of our fabulous ‘Nystagmus is …’ competition winner – drum roll, please … … Continue reading And the winner is …

Posted on August 5, 2019August 5, 2019Author Sue RickettsCategories Posts
Mike wears his Nystagmus Network T short and smiles for the camera

Mike’s wiggly walk – video update


Mike has nystagmus and so does his young nephew, Archie. Later this year and well into 2020, Mike will be walking the length of New Zealand to help find a … Continue reading Mike’s wiggly walk – video update

Posted on July 24, 2019July 24, 2019Author Sue RickettsCategories Fundraising, PostsTags Walk for Wiggly Eyes

We publish our annual review 2018


Trustees are pleased to announce that the 2018 Annual Review of the Nystagmus Network is now published on the Charities Commission website. Chairman of the charity, Richard Wilson OBE, says: … Continue reading We publish our annual review 2018

Posted on June 24, 2019June 24, 2019Author Sue RickettsCategories PostsTags Annual review 2018

How amazing is Sonny-John?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” On Nystagmus Awareness Day itself a … Continue reading How amazing is Sonny-John?

Posted on June 20, 2019June 20, 2019Author Sue RickettsCategories Fundraising, Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Jane?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Jane believes that having a sense … Continue reading How amazing is Jane?

Posted on June 19, 2019June 19, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Alfie?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” To his parents, Alfie truly is … Continue reading How amazing is Alfie?

Posted on June 18, 2019June 18, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

Our wobbly week competition


It’s wobbly week! And it’s Nystagmus Awareness Day this Thursday, 20 June. We want to raise as much awareness of nystagmus as possible and make sure that everyone has a … Continue reading Our wobbly week competition

Posted on June 17, 2019June 17, 2019Author Sue RickettsCategories Charity highlights, Nystagmus Awareness Day, Posts

How amazing is Ursula?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Today Ursula shares her own amazing … Continue reading How amazing is Ursula?

Posted on June 12, 2019June 12, 2019Author Sue RickettsCategories Guest posts, Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?
Roger stands in his garden.

How amazing is Roger?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s a story we just had … Continue reading How amazing is Roger?

Posted on June 10, 2019June 21, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?, nystagmus heroes

How amazing is Poppy?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Poppy has ocular albinism, nystagmus, astigmatism. … Continue reading How amazing is Poppy?

Posted on June 7, 2019June 6, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

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