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Supporting people living with nystagmus

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Category: Posts

Simon in Nystagmus Network T shirt.

#YouMadeItHappen – Simon


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with … Continue reading #YouMadeItHappen – Simon

Posted on November 19, 2018November 14, 2018Author Sue RickettsCategories Charity highlights, Posts, Thank yousTags #YouMadeItHappen
Jay Self wearing scrubs.

Does albinism protect against AMD?


We are seeking potential research candidates on behalf of researchers in Southampton (Jay Self and Helena Lee) who must be over the age of 60 and have any form of … Continue reading Does albinism protect against AMD?

Posted on September 3, 2018June 26, 2019Author Sue RickettsCategories Posts, researchTags albinism, AMD, ocular albinism, University of Southampton

Nystagmus Research Conference 2018


The Nystagmus Network is hosting a nystagmus research conference later this year. Delegates are senior researchers, academics and clinicians from the top UK nystagmus research centres, with expertise in testing … Continue reading Nystagmus Research Conference 2018

Posted on August 2, 2018Author Sue RickettsCategories Posts

Seeing Beyond The Eyes


The Nystagmus Network is pleased to share this guest post from our friends at Visualise Training and Consultancy. The new guide ‘Seeing Beyond The Eyes’ includes details of the charity’s … Continue reading Seeing Beyond The Eyes

Posted on August 2, 2018March 30, 2023Author Sue RickettsCategories Guest posts, Information and Support, PostsTags awareness, clinicians, information, living with nystagmus, nystagmus, support, Visualise Training and Consultancy

You could win £450 for the Nystagmus Network


SMALL CHARITY WEEK begins on Monday 18 June. If the Nystagmus Network is your favourite small charity, why not enter the Facebook, Twitter or Instagram competition to help us win … Continue reading You could win £450 for the Nystagmus Network

Posted on May 24, 2018May 25, 2018Author Sue RickettsCategories Posts, Small Charity WeekTags #ILoveSmallCharities, awareness, nystagmus, Small Charity Week

Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online


We all shop online, but did you know that, by signing up with Easyfundraising.com you could be raising money for the Nystagmus Network – and it doesn’t cost you a … Continue reading Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online

Posted on April 11, 2018April 18, 2018Author Sue RickettsCategories Fundraising, Posts

We can help with your bucket list


Ever wanted to try the London to Brighton cycle run? Well, now you can. Skyline Events and the Nystagmus Network can make your dream come true. Watch the video here. … Continue reading We can help with your bucket list

Posted on March 2, 2018March 1, 2018Author Sue RickettsCategories Posts

Mousetrap Theatre Experience, London


The Nystagmus Network is considering organising a theatre experience for children and young people with nystagmus and their families, in partnership with Mousetrap Theatre Projects. The day would include a … Continue reading Mousetrap Theatre Experience, London

Posted on November 16, 2017January 18, 2018Author Sue RickettsCategories PostsTags children and young people, London, theatre

Would you like to work for the Nystagmus Network?


The charity is currently recruiting to a new temporary part time or full time post of Information Support Officer. This opportunity is offered initially to 30 April 2018 pending a … Continue reading Would you like to work for the Nystagmus Network?

Posted on October 3, 2017Author Sue RickettsCategories Posts

Moorfield’s latest nystagmus research in children


A research team at Moorfield’s Eye Hospital in London, headed by Maria Theodourou, is conducting an investigation into how the vision and nystagmus develop in young children. Until the end … Continue reading Moorfield’s latest nystagmus research in children

Posted on July 25, 2017February 28, 2018Author Sue RickettsCategories Posts

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