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Category: Posts

You could win £450 for the Nystagmus Network


SMALL CHARITY WEEK begins on Monday 18 June. If the Nystagmus Network is your favourite small charity, why not enter the Facebook, Twitter or Instagram competition to help us win … Continue reading You could win £450 for the Nystagmus Network

Posted on May 24, 2018May 25, 2018Author Sue RickettsCategories Posts, Small Charity WeekTags #ILoveSmallCharities, awareness, nystagmus, Small Charity Week

Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online


We all shop online, but did you know that, by signing up with Easyfundraising.com you could be raising money for the Nystagmus Network – and it doesn’t cost you a … Continue reading Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online

Posted on April 11, 2018April 18, 2018Author Sue RickettsCategories Fundraising, Posts

We can help with your bucket list


Ever wanted to try the London to Brighton cycle run? Well, now you can. Skyline Events and the Nystagmus Network can make your dream come true. Watch the video here. … Continue reading We can help with your bucket list

Posted on March 2, 2018March 1, 2018Author Sue RickettsCategories Posts

Mousetrap Theatre Experience, London


The Nystagmus Network is considering organising a theatre experience for children and young people with nystagmus and their families, in partnership with Mousetrap Theatre Projects. The day would include a … Continue reading Mousetrap Theatre Experience, London

Posted on November 16, 2017January 18, 2018Author Sue RickettsCategories PostsTags children and young people, London, theatre

Would you like to work for the Nystagmus Network?


The charity is currently recruiting to a new temporary part time or full time post of Information Support Officer. This opportunity is offered initially to 30 April 2018 pending a … Continue reading Would you like to work for the Nystagmus Network?

Posted on October 3, 2017Author Sue RickettsCategories Posts

Moorfield’s latest nystagmus research in children


A research team at Moorfield’s Eye Hospital in London, headed by Maria Theodourou, is conducting an investigation into how the vision and nystagmus develop in young children. Until the end … Continue reading Moorfield’s latest nystagmus research in children

Posted on July 25, 2017February 28, 2018Author Sue RickettsCategories Posts

The effect of attachment style on quality of life in visually impaired individuals


City University would like to invite you to take part in a research study. Before you decide whether you would like to take part it is important that you understand … Continue reading The effect of attachment style on quality of life in visually impaired individuals

Posted on June 21, 2017February 28, 2018Author Sue RickettsCategories Posts

My bouncing eyes baby!


Hello, my name is Charlotte and I am mother to a ridiculously delicious six year old girl named Scarlett. In every way Scarlett is a picture of happiness and joy. … Continue reading My bouncing eyes baby!

Posted on February 17, 2017Author Sue RickettsCategories Living with nystagmus, Parent stories, PostsTags living with nystagmus, nystagmus

University Hospital Southampton Questionnaire Study 2017


Would you like to participate in a study researching the support and information available for people with Nystagmus and their families? The team based at the University Hospital Southampton are running … Continue reading University Hospital Southampton Questionnaire Study 2017

Posted on February 9, 2017September 3, 2018Author Sue RickettsCategories Information and Support, Posts, researchTags research, University of Southampton

Nystagmus Network Research Strategy 2017-19


One of the main goals at the Nystagmus Network is to encourage research with a view to finding treatments, a cure and to improve the everyday lives of those with … Continue reading Nystagmus Network Research Strategy 2017-19

Posted on February 7, 2017Author Sue RickettsCategories Charity highlights, PostsTags research, research strategy, strategy

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