Thank you, Libby


Inspired by her 2 younger sisters, who both have nystagmus, final year geography student, Libby chose to explore the experiences of young visually impaired adults in their local space and environment  and the impacts on identity formation for her dissertation. You can read more about Libby’s research here: https://nystagmusnetwork.org/can-you-help-libby-with-her-research/ Thank you for being a great ‘big … Continue reading Thank you, Libby

Living with Acquired Nystagmus and Oscillopsia?


The Nystagmus Network runs a virtual support group where people living with Acquired Nystagmus and/or Oscillopsia chat together on email and on zoom to share their experiences and try to find answers together. If you’re living with AN or oscillopsia and would like to join the group, you’d be most welcome.  At our recent virtual Open Day we were … Continue reading Living with Acquired Nystagmus and Oscillopsia?

New nystagmus research


We are excited to announce the start of a new research study into nystagmus The aim of the study is to gather evidence about people’s perceptions of nystagmus. The results will help shape further nystagmus research and awareness raising strategies, eventually contributing to better understanding of the condition and improved quality of life as a … Continue reading New nystagmus research

Do you have Acquired Nystagmus or Oscillopsia?


We need you! The Nystagmus Network is supporting Professor Chris Harris and his team at the Royal Eye Hospital, Plymouth to investigate further Acquired Nystagmus and Oscillopsia. If you have either or both, we’d love to hear from you. You can help us develop a further research study into these complex, life changing conditions. We … Continue reading Do you have Acquired Nystagmus or Oscillopsia?

Nystagmus Network hosts UK research workshop


On Friday 2 October, the Nystagmus Network once again hosted the annual UK nystagmus research workshop. This is an opportunity for researchers, clinicians and academics to get together to share their work and plan greater collaboration. They are, after all, all working towards the same goal. The workshop took place via zoom. Nystagmus Network trustees … Continue reading Nystagmus Network hosts UK research workshop

Can you help Libby with her research?


Introducing Libby I am a geography student studying in my final year at Loughborough University.  I am seeking participants for my dissertation study which aims to explore the experiences of young adults (18-25) in their local space / environment & the impacts on identity formation. This study is inspired by my two younger sisters, who … Continue reading Can you help Libby with her research?

Congratulations, Nikita


On World Sight Day 2020, the Nystagmus Network is delighted to celebrate the achievement of Nikita Thomas who has been named an Eye Health Hero by the IAPB (the International Agency for the Prevention of Blindness). Nikita, who works in nystagmus research at the University of Cardiff, was nominated by the Nystagmus Network and has … Continue reading Congratulations, Nikita

Research participation opportunity for 12-14 year olds


Ifigeneia Manitsa is a Psychology Researcher and Assistant Lecturer at Kingston University. She is currently conducting the last two studies of her PhD which is focused on the academic and social inclusion of adolescents with and without visual impairments! If a student wants to participate in both studies, they will be asked to complete three questionnaires focused on … Continue reading Research participation opportunity for 12-14 year olds

Technology use in young people with impaired vision


Guest post from Saima Begum, University College London I am a student at University College London, studying at the Institute of Education and I am emailing to ask for your help with my Masters research project into Vision Impairment. This project aims to examine technology use in young people with vision impairment, and whether this … Continue reading Technology use in young people with impaired vision