365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Steph – you helped make that happen! Today the whole nystagmus community says thank you to you.
Category: Thank yous
#YouMadeItHappen – Harry
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Harry – you helped make that happen! Today the whole nystagmus community says thank you to you.
#YouMadeItHappen – Simon
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Simon – you helped make that happen! Today the whole nystagmus community says thank you to you.
#YouMadeItHappen – Sarah and Lisa
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Sarah and Lisa – you helped make that happen! Today the whole nystagmus community says thank you to … Continue reading #YouMadeItHappen – Sarah and Lisa
#YouMadeItHappen – Jac
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Jac – you helped make that happen! Today the whole nystagmus community says thank you to you.
#YouMadeItHappen – Finlay
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Finlay – you helped make that happen! Today the whole nystagmus community says thank you to you.
#YouMadeItHappen Monday 19 November
At this time of year we like to celebrate all the amazing things you, our supporters, have made happen. Thanks to you, the Nystagmus Network has spent another successful year providing support and information to everyone affected by nystagmus, raising awareness with our annual Nystagmus Awareness Day on 20 June, our publications, website and our many guest speaker … Continue reading #YouMadeItHappen Monday 19 November
They did it – at last!
The unpredictable British weather finally came good for our intrepid (postponed) abseilers on Sunday 21 September, when Clare A, Glen and Matt finally completed their abseil from the viewing platform of the ArcelorMittal Orbit for nystagmus research. With not a cloud in the sky nor any hint of wind and rain, our intrepid 3 enjoyed … Continue reading They did it – at last!
Thank you! You were amazing!
Nystagmus Network trustees and staff would like to say a huge thank you to everyone who helped make Open Day 2018 such an amazing day. Thank you to all our members and other delegates for supporting Open Day, especially those who travelled long distances and had to get up ridiculously early on a Saturday to … Continue reading Thank you! You were amazing!
Well done, Bronagh and Susan!
Last Sunday Bronagh and Susan completed the Spartan Scotland 2018 challenge for the Nystagmus Network. That’s a lot of running, a lot of obstacles and an awful lot of mud. But they did it – in just 3 hours. Well done and thank you to both of them from everyone at Nystagmus Network. You can … Continue reading Well done, Bronagh and Susan!