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Supporting people living with nystagmus

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Category: Thank yous

Julia and her young daughter smile for the camera. They are at the seaside and the child is holding a toy windmill.

Thank you, Julia


Living with the triple whammy of nystagmus, myopia and astigmatism, Julia is an accomplished musician. She also sings in choirs, which often happens in poorly lit churches. In her blog … Continue reading Thank you, Julia

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Living with nystagmus, Nystagmus heroes, Thank yousTags nystagmus, nystagmus network
Josh and his family smile for the camera.

Thank you, Josh


Josh can’t see rain – can you? Josh was born with nystagmus and ocular albinism, but he hasn’t let that hold him back. Josh has been a primary school teacher … Continue reading Thank you, Josh

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Living with nystagmus, Nystagmus heroes, Thank yousTags nystagmus, nystagmus network
Jaina smiles at the camera.

Thank you, Jaina


Jaina joined the Nystagmus Network team in August 2020 as an intern, spending some time to gain experience of working in a small charity. Jaina was hugely helpful in the … Continue reading Thank you, Jaina

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Nystagmus heroes, Thank yousTags nystagmus, nystagmus network
A banner at a fundraising stall.

Thank you, Emma


For Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. … Continue reading Thank you, Emma

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Fundraising, Thank yousTags nystagmus, nystagmus heroes, nystagmus network, Thank you
Claire and her young son smile for the camera

Thank you, Claire


Both Claire and her young son, Zac have nystagmus. In 2019 Claire decided she was going to do a sky dive for the Nystagmus Network. Postponements because of the weather … Continue reading Thank you, Claire

Posted on December 2, 2020December 2, 2020Author Sue RickettsCategories Fundraising, Nystagmus heroes, Thank yousTags #GiveBack2020, nystagmus, nystagmus network, sky dives
12 thumbnail images of people who have given so much to the Nystagmus Network and the nystagmus community in 2020.

#GiveBack2020


We’ve all had to give up so much this year and we’ll all be pleased to make it to the end of 2020. But before we do, the Nystagmus Network … Continue reading #GiveBack2020

Posted on December 1, 2020December 3, 2020Author Sue RickettsCategories Charity highlights, Fundraising, Thank yous

Howzat?


Nystagmus Network supporter, Phil Morris organised a charity cricket match on Sunday 30th June 2019. The teams were Phil’s own Hendrefoilan Hedgehogs versus an Invitational 11 from a number of … Continue reading Howzat?

Posted on July 22, 2019July 24, 2019Author Sue RickettsCategories Events, Fundraising, Nystagmus Awareness Day, Thank yous
Children wearing Nystagmus Network T shirts and the words Thank you from Nystagmus Network.

Thank you, Shirley


The Nystagmus Network would like to say a huge thank you to Shirley Pennington, her family, friends and local Shropshire community. Shirley recently organised an auction of promises to raise … Continue reading Thank you, Shirley

Posted on June 27, 2019October 13, 2020Author Sue RickettsCategories Fundraising, Thank yousTags nystagmus heroes
The Nystagmus Network eye logo and the words Nystagmus Awareness Day 20 June

Thank you – you are amazing


As ‘wobbly week’ draws to a close for another year we just wanted to thank everyone for making Nystagmus Awareness day 2019 such a success. Thank you to our fundraisers, … Continue reading Thank you – you are amazing

Posted on June 24, 2019June 24, 2019Author Sue RickettsCategories Charity highlights, Nystagmus Awareness Day, Thank yousTags amazing nystagmus success stories, How amazing are you?

Benjy’s cake sale


A big thank you to everyone at St John the Baptist junior school in Hampton Wick (Richmond upon Thames) for nominating Nystagmus Network as their chosen charity for their recent … Continue reading Benjy’s cake sale

Posted on April 30, 2019April 30, 2019Author Sue RickettsCategories Fundraising, Thank yous

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