Thank yous – Page 2 – Nystagmus Network

Thank you, Jaina

Jaina joined the Nystagmus Network team in August 2020 as an intern, spending some time to gain experience of working in a small charity. Jaina was hugely helpful in the run up to virtual Open Day 2020 and you may have ‘met’ her in our forums.

Jaina says: “A huge thank you for this opportunity, I have thoroughly enjoyed learning about nystagmus and helping the team with the big open day and other events. I have definitely learnt a lot of transferable skills.

“My family donates money for an eye camp in India, where we visited a little village many travelled miles to for free eye care. This was really inspiring and made me more appreciative of healthcare in the UK.”

This year has been a difficult year for us all, but Giving makes us feel Good! #GiveBack2020 is your chance to take something positive from 2020 and make a difference at the same time!

Please volunteer, fundraise or make a donation to the Nystagmus Network for #GiveBack2020

Fundraise for the Nystagmus Network here

Contact us here to volunteer

Please make a donation here

THANK YOU

Thank you, Emma

For Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. An amazing effort! Thank you so much!

At Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser (remember those?) for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. An amazing effort! Thank you so much!

This year has been a difficult year for us all, but Giving makes us feel Good! #GiveBack2020 is your chance to take something positive from 2020 and make a difference at the same time!

Please volunteer, fundraise or make a donation to the Nystagmus Network for #GiveBack2020

Contact us here to volunteer

Find fundraising ideas here

Please make a donation here

THANK YOU

Claire and her young son smile for the camera

Thank you, Claire

Both Claire and her young son, Zac have nystagmus. In 2019 Claire decided she was going to do a sky dive for the Nystagmus Network. Postponements because of the weather and then again this year because of lockdown, meant Claire was waiting nervously nearly a whole year before she could make her leap. But she finally did it in 2020 and raised £420.

Thank you, Claire.

This year has been a difficult year for us all, but Giving makes us feel Good! #GiveBack2020 is your chance to take something positive from 2020 and make a difference at the same time!

Please volunteer, fundraise or make a donation to the Nystagmus Network for #GiveBack2020

Contact us here to volunteer

Find fundraising ideas here

Please make a donation here

THANK YOU

Thank you, Ahrian

In 2020 Ahrian offered the Nystagmus Network her services as a volunteer. So far she has designed the logo for the @NystagmusYouth Instagram account and the new T-shirt for our 19-21 challenge.

Ahrian has nystagmus herself and wanted to give back something to the nystagmus community. She says: “I was born with nystagmus and grew up really anxious about it. It was really bad when I got nervous (which was 80% of the time) but then I realised I could take control of things like that. I learned to work with it and be proud of who I am. I was a competitive cheerleader for 10 years and loved tumbling, although it made me feel super dizzy!”

This year has been a difficult year for us all, but Giving makes us feel Good! #GiveBack2020 is your chance to take something positive from 2020 and make a difference at the same time!

Please volunteer, fundraise or make a donation to the Nystagmus Network for #GiveBack2020.

Contact us here to volunteer

Find fundraising ideas here

Please make a donation here

THANK YOU

12 thumbnail images of people who have given so much to the Nystagmus Network and the nystagmus community in 2020.

#GiveBack2020

We’ve all had to give up so much this year and we’ll all be pleased to make it to the end of 2020.

But before we do, the Nystagmus Network is celebrating 12 people who’ve given back so much to the nystagmus community in 2020.

We’ll be telling their 12 stories in the run up to Christmas, so please keep checking back.

It was really hard to choose just 12 as so many people have been so generous with their time, energy, enthusiasm, expertise and skills.

Thank you to all of you.

This year has been a difficult year for us all, but Giving makes us feel Good! #GiveBack2020 is your chance to take something positive from 2020 and make a difference at the same time!

Please volunteer, fundraise or make a donation to the Nystagmus Network for #GiveBack2020.

Contact us here to volunteer

Find fundraising ideas here

Please make a donation here

THANK YOU

Howzat?

Nystagmus Network supporter, Phil Morris organised a charity cricket match on Sunday 30th June 2019. The teams were Phil’s own Hendrefoilan Hedgehogs versus an Invitational 11 from a number of other teams around the west of Swansea.

A great game was had by all with a post match BBQ, cake stall and raffle.

Due to the generosity of all a fantastic sum of £900 was raised on the day.

Phil’s son Jac, who has nystagmus, attended and watched the game. Jac loves all kinds of sports and is no stranger to fundraising himself.

THANK YOU Phil and Jac!

Children wearing Nystagmus Network T shirts and the words Thank you from Nystagmus Network.

Thank you, Shirley

The Nystagmus Network would like to say a huge thank you to Shirley Pennington, her family, friends and local Shropshire community. Shirley recently organised an auction of promises to raise money for the Nystagmus Network.

Shirley’s event raised a phenomenal £16,625!

The auction was in part a celebration of Shirley’s son, James’s marriage to Rhiann and in honour of her granddaughter, Charlotte, who has nystagmus.

The event was supported by the local WI and contributions came from many quarters. Both the family and the charity were astonished by the level of support. The auction included 70 lots, ranging from a crocheted cushion to a day with the muck spreader!

Cheques to the value of £16,625 were handed over at a recent WI meeting to longstanding Nystagmus Network member, supporter and volunteer, Andrew Black who lives locally and has a grown up son with nystagmus.

The money raised will go towards the charity’s investment in a brand new post-doctoral project in nystagmus research, bringing a new expert into the field, and will help make a huge difference to the future of nystagmus for us all.

Thank you, Shirley and everyone for your inventive promises and generous contributions.

The picture shows Rushbury and Cardington WI chair, Kaye Smith, James, Charlotte, Rhiann and Andrew

Thank you – you are amazing

As ‘wobbly week’ draws to a close for another year we just wanted to thank everyone for making Nystagmus Awareness day 2019 such a success.

Thank you to our fundraisers, event organisers and all the parkrunners. Thank you for your amazing nystagmus success stories, your videos, photos, your donations, presentations, displays and quizzes and thank you, too, for baking all those cakes!

We couldn’t do any of this without you. You truly are amazing!

Benjy’s cake sale

A big thank you to everyone at St John the Baptist junior school in Hampton Wick (Richmond upon Thames) for nominating Nystagmus Network as their chosen charity for their recent cake sale. Coordinated by Benjy Greenwood and Year 6, the cake sale raised an amazing £316.46 and sold over 300 cakes in a 15 min ‘feeding frenzy’ at the end of the school day. Well done, Benjy!

Want a T-shirt like Benjy’s? Head over to our online shop.

Eye to Eye – you smashed it!

Huge congratulations and thanks to everyone who turned out on a very blustery Sunday morning to walk 4 or 14 miles around the streets of London to raise money for pioneering nystagmus research at Moorfields and UCL.

The final total is still being counted, but we can report that together you have so far raised a massive £7,600 and counting! WELL DONE EVERYONE!

See photos of our fabulous walkers and finishers by clicking here.