A new e-learning course to develop knowledge, skills and confidence when assisting people with a visual impairment has been launched by award-winning social businessman and Nystagmus Network trustee, Dan Williams … Continue reading New e-learning course enhances skills when assisting people with sight loss
Why we need a pathway Getting a diagnosis of nystagmus for a small baby is an anxious time if you’ve never heard of the condition before. It’s even harder if … Continue reading The Nystagmus Care Pathway
Aniridia UK will host the European Aniridia Conference online from 31 July to 1 August 2021 The event will combine excellence in aniridia research and clinical practice, plus patient engagement. … Continue reading The European Aniridia Conference
Nystagmus Network wins £1,000 Movement for Good award The Nystagmus Network has won a £1,000 Movement for Good award from Ecclesiastical Insurance Group thanks to nominations from the public. The … Continue reading Nystagmus Network wins £1,000 Movement for Good award
The Nystagmus Network charity name and logo are now Registered Trade Marks thanks to the advice and support of our friends Simon, Sarah, Akber and Ella at the London law … Continue reading Nystagmus Network® Trade Marks
I was born with CN and for the most part consider myself to be lucky compared to many in our group. Service to others has been a significant part of … Continue reading How amazing is Edwin?
Wyatt has always had this positive outlook. He is determined, smart, and gives EVERYTHING his all! When he was 4 months old he was diagnosed with Nystagmus. We as parents … Continue reading How amazing is Wyatt?
I am Grayson and I am 5 on 18 June. I have Ocular Albinism and Nystagmus. When I started school in September, I was very scared and very nervous and was … Continue reading How amazing is Grayson?
My name is Poppy. I’m 11 years old. I was diagnosed with nystagmus when I was 2 months old. I never allow my nystagmus to hold me back. I love … Continue reading How amazing is Poppy?
Zoom celebration for International Albinism Awareness Day on 13 June 2021 Guest post from Roselle Potts, Chair of the Albinism Fellowship To mark International Albinism Awareness Day* on 13 June … Continue reading Albinism Awareness Day
