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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

Help us win a £1,000 donation


A specialist charity insurer has launched its annual festive campaign to donate £1,000 to 120 charities over the 12 days leading up to Christmas. The campaign is called 12 Days … Continue reading Help us win a £1,000 donation

Posted on November 8, 2019November 8, 2019Author Sue RickettsCategories FundraisingTags Ecclesiastical Insurance
Mervyn smiles for the camera.

Handheld OCT can predict future vision in infantile nystagmus


Dr Mervyn Thomas of the Ulverscroft Eye Unit, University of Leicester developed a grading system for arrested retinal development as a med student in 2011. 8 years later the team … Continue reading Handheld OCT can predict future vision in infantile nystagmus

Posted on November 6, 2019November 6, 2019Author Sue RickettsCategories News, researchTags Dr Mervyn Thomas, University of Leicester

Nystagmus and sleep


Parents often report that their children experience problems sleeping and wonder whether there is any connection with nystagmus. Now a team at University College, London is conducting a research study … Continue reading Nystagmus and sleep

Posted on November 6, 2019November 6, 2019Author Sue RickettsCategories Living with nystagmus, researchTags sleep, University College London

Calling all Caregivers – take part in research


Guest post by Jamie Enoch, Researcher at School of Health Sciences at City University London Are you a UK-based relative, friend or caregiver of someone living with a visual impairment? … Continue reading Calling all Caregivers – take part in research

Posted on October 31, 2019October 31, 2019Author Sue RickettsCategories researchTags caregiver, City University London, research participation opportunity
A group of parents and Nystagmus Network volunteers.

Fingers crossed


Today at the Nystagmus Network we have our fingers firmly crossed. Why? Because we want to say a big THANK YOU to all the lovely national lottery players who helped … Continue reading Fingers crossed

Posted on October 29, 2019October 25, 2019Author Sue RickettsCategories Information and SupportTags education support, fingers crossed, National Lottery Community Fund, Parent Power

VICTA Parent Portal launches today


A brand new website signposting all the organisations available to help parents supporting a child with impaired vision launches today. Nystagmus Network is proud that our Education resource HUB features … Continue reading VICTA Parent Portal launches today

Posted on October 21, 2019October 18, 2019Author Sue RickettsCategories Education, Information and SupportTags information for parents, VICTA

Seeing Beyond the Eyes project wins Vision UK John Thompson Award for Excellence in Services, Support and Care 2019


The Nystagmus Network is delighted to share news of the success of Visualise Training’s Seeing Beyond the Eyes Project. Visualise Training’s, Founder, Daniel Williams, was our keynote speaker at Open … Continue reading Seeing Beyond the Eyes project wins Vision UK John Thompson Award for Excellence in Services, Support and Care 2019

Posted on October 14, 2019October 14, 2019Author Sue RickettsCategories NewsTags Daniel Williams, Seeing Beyond the Eyes, Vision UK, Visualise Training and Consultancy

#YouMadeItHappen – Delilah


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Delilah and her family offered the perfect story … Continue reading #YouMadeItHappen – Delilah

Posted on October 4, 2019October 17, 2019Author Sue RickettsCategories Information and Support, Living with nystagmus, Nystagmus heroesTags #YouMadeItHappen
Roger stands in his garden.

#YouMadeItHappen – Roger


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Roger inspired us to write a brand new … Continue reading #YouMadeItHappen – Roger

Posted on October 4, 2019October 17, 2019Author Sue RickettsCategories Information and Support, Living with nystagmus, Nystagmus heroesTags #YouMadeItHappen
Nadine smiles for the camera

#YouMadeItHappen – Nadine


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Nadine decided she didn’t want her little daughter … Continue reading #YouMadeItHappen – Nadine

Posted on October 4, 2019October 4, 2019Author Sue RickettsCategories Information and Support, Living with nystagmus, Nystagmus heroesTags #YouMadeItHappen

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