awareness – Nystagmus Network

Trish is smiling for the camera and has long light coloured hair

Patricia’s Story

My name is Trish (Patricia). I was born in 1956. Nystagmus was virtually unknown back then. My parents struggled to keep me in mainstream school and I faced many challenges … Continue reading Patricia’s Story

Glen proudly standing in front of a running track wearing a medal. He is wearing sunglasses and a bright yellow jacket.

Glen’s Story

I was diagnosed with nystagmus almost from birth and I had glasses from around 18 months. I attended regular state school and struggled to see, however my parents were keen … Continue reading Glen’s Story

Flynn is smiling for the camera and is wearing glasses. He is standing in front of lots of greenery.

Flynn’s Story

This is Flynn. Flynn was diagnosed with congenital nystagmus at the age of 2. When Flynn was about 6 months old, our health visitor noticed something was not quite right. … Continue reading Flynn’s Story

Ava holds her 'player of the week' certificate for the camera.

Ava

Ava was born with congenital nystagmus. She loves rugby and swimming. She’s full of life and lets nothing get in her way.

Cohen smiling for the camera, wearing glasses and a white polo shirt with a black striped collar

Cohen’s Story

“Cohen was diagnosed with congenital nystagmus when he was around 6 months old. He is now almost 10 years old. Cohen’s cousin was diagnosed with nystagmus a year or … Continue reading Cohen’s Story

Sue weas a pink polo shirt and carries a beach bag, sunglasses and her shoes. She is on a beach.

Sue’s 1984 Story

In 1984 I had never heard of nystagmus and had no connection with the condition at all. It was for me a very momentous year, though, because it was the … Continue reading Sue’s 1984 Story

Two young children in party clothes stand beside a frosted cake.

Onyeka’s 1984 Story

This is a photo of my elder brother (Tony) and me at my first birthday celebration in Nigeria. Report has it that he desperately tried to steal the show but … Continue reading Onyeka’s 1984 Story

A blue and green striped egg with the words Nystagmus Network and the number 1 on it in white.

Join our virtual Easter Egg Hunt

🐰🌷 Ready to hop into some Easter fun? Join our virtual Easter Egg Hunt through our website to find hidden eggs🥚each with a letter on it to be discovered! Collect … Continue reading Join our virtual Easter Egg Hunt

Perceptions of nystagmus and the impact of the Covid-19 pandemic

Impact of the COVID-19 pandemic on individuals with nystagmusand an exploration of public assumptions about the condition: an electronic questionnaire study The study explored the self-reported impact of the COVID-19 … Continue reading Perceptions of nystagmus and the impact of the Covid-19 pandemic

A young child sitting at a table drawing.

Nystagmus isn’t catching – tell your friends!

The little girl in the picture has nystagmus. She is enjoying some drawing at a Nystagmus Network event some years ago. At the time she had just started school and … Continue reading Nystagmus isn’t catching – tell your friends!