Vanessa and Richard were away on holiday when they heard that the Nystagmus Network were looking for people to abseil down the UK’s tallest piece of public art to raise money for nystagmus research at Moorfields and UCL.
They signed up straight away.
The big day came, but the weather was certainly not what they’d been used to on vacation.
Thank you to both of you for putting up with all that ghastly rain. We hope you managed to enjoy the view from the platform at least.
Richard did all his fundraising offline, but you can still sponsor Vanessa here.
Although the Team Nystagmus Network / Moorfields Eye Charity fundraising abseil at the ArcelorMittal Orbit couldn’t go ahead on Sunday morning as planned due to heavy rain and high winds, Vicki and Tom took advantage of some available slots on Saturday morning and took their leap for nystagmus research then.
This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park to raise money for nystagmus research at Moorfields and University College, London.
Our 10 intrepid Team Nystagmus Network abseilers were set a sponsorship target of £250 each. At the time of writing they’ve already far exceeded that target and look set to be able to make a real impact on funding for nystagmus research over the coming months.
We wish them all well on behalf of the entire nystagmus community.
Matthew Dawson will be abseiling down the UK’s allest piece of public art on 23 September to raise much needed funding for nystagmus research at Moorfields and UCL. He is joining Team Nystagmus Network Abseil at the suggestion of his wife and for his young son, Owen, who has nystagmus.
Apparently, some of Matt’s sponsors have asked him to wear fancy dress for the abseil. Maybe he will if his sponsorship total gets high enough!
Vicky and Claire are both trustees of the Nystagmus Network. That’s not all they have in common!
On 23 September they will both be scaling down the Olympic Park Orbit alongside their Team Nystagmus Network Abseil team mates.
They’re doing it to raise funding for nystagmus research. Every penny they raise will go directly into pioneering work at Moorfields Eye Hospital and University College, London.
You can help support them by visiting their Justgiving pages.
Click here to sponsor Vicky and her husband, Richard.
Glen is a member of the Nystagmus Network and a true friend of the charity. We were privileged to meet him last year when he led a workshop at Open Day on building social networks. You can read all about Glen’s adventures as a successful young man about London, who just happens to have aniridia and nystagmus, on his blog, Welleyenever.
Now Glen is taking the ultimate challenge for nystagmus research. He’s gong to be abseiling down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. It’s an exhilarating descent to the ground and Glen’s really looking forward to the breathtaking views across London.
You can join Glen for the Team Nystagmus Network Abseil. Contact us today for details.
To sponsor Glen, please visit his Justgiving page. Thank you!
Introducing Claire, the next member of Team Nystagmus Network Abseil. Claire is a keen rock climber, so abseiling her way down the ArcelorMittal Orbit is going to be a walk in the park! She’s doing it all to raise money for nystagmus research at Moorfields and UCL.
If you’d like to join Claire, please contact us today!
To sponsor Claire, please visit her Justgiving page. Thank you!
Vikki’s family have been members and supporters of the Nystagmus Network for many years. Parents, Peter and Lynne, even organised an entire Open Day one year.
Every penny the couple raise will go directly into nystagmus research at Moorfields Eye Hospital and University College, London.
Could you take the plunge and abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park? It’s an exhilarating descent to the ground, with a breathtaking 20 mile vista across London, including iconic buildings such as the Gherkin, St Paul’s Cathedral, Canary Wharf and Wembley Stadium, as well as the world famous sporting venues at Queen Elizabeth Olympic Park.
It surely is a once in a lifetime challenge!
The Nystagmus Network is partnering with Moorfields Eye Charity to raise money for nystagmus research at Moorfields Eye Hospital, where Mr Vijay Talyor is currently investigating congenital nystagmus and visual crowding, and its research the partner, the University College London (UCL) Institute of Ophthalmology where Dr Parashkev Nachev is pioneering the use of magnetic implants to control the rapid eye movements associated with acquired nystagmus.
Your fundraising abseil will directly support these and other nystagmus research projects.
Time and date: 8am – 1pm, Sunday 23 September 2018
Registration fee: £50
Sponsorship target: £250
Address: ArcelorMittal, Queen Elizabeth Olympic Park, London E15 2NH
Experience: No experience necessary, all training given on the day
Participants will also receive:
· A fundraising pack full of tips and advice
· Ongoing support from our expert fundraisers
· A Moorfields t-shirt if you raise over £350
· A free photo if you raise over £500
If you think you could take the leap for nystagmus research, please complete the form below.
A new research project is being undertaken at Moorfields Eye Hospital and University College London. The aim of the study is to understand better the visual abilities of people with congenital nystagmus, with a particular focus on visual crowding, a phenomenon which occurs when an object that is visible in isolation becomes impossible to recognise when surrounded by other objects.
The Nystagmus Network is supporting Mr Vijay Tailor, Paediatric Clinical Trials Research Orthoptist and Clinical PhD Training Fellow, to recruit suitable participants.
Subjects should have a formal diagnosis of Congenital Idiopathic Nystagmus and be aged 18 to 50.
People who also have albinism or strabismus amblyopia (‘squint’ or ‘lazy eye’) are not suited to this particular study.
If you have short or long sight, this is not a problem provided you wear prescription glasses or contact lenses to correct this.
If you would like to find out more about the research project and apply to take part then please complete and submit the form below. By completing the form you are giving us permission to pass on your details to the relevant research team.
