Moorfields consultant, Dr Marya Moosajee, is featured today in an Evening Standard article for her pioneering research, seeking to cure rare genetic causes of blindness.
Read the article here.
Magnets and nystagmus – research news update
Researchers at University College London, Moorfields Eye Hospital, and the University of Oxford are developing magnetic implants to treat nystagmus. Last year, Nystagmus Network assisted Dr Parashkev Nachev, from University College London, in recruiting suitable candidates with the acquired from of nystagmus to take part in the next stage trial, following initial success with a single subject.
Read the full update here.
New research project on visual crowding in CIN
A new research project is being undertaken at Moorfields Eye Hospital and University College London. The aim of the study is to understand better the visual abilities of people with congenital nystagmus, with a particular focus on visual crowding, a phenomenon which occurs when an object that is visible in isolation becomes impossible to recognise when surrounded by other objects.
The Nystagmus Network is supporting Mr Vijay Tailor, Paediatric Clinical Trials Research Orthoptist and Clinical PhD Training Fellow, to recruit suitable participants.
Subjects should have a formal diagnosis of Congenital Idiopathic Nystagmus and be aged 18 to 50.
People who also have albinism or strabismus amblyopia (‘squint’ or ‘lazy eye’) are not suited to this particular study.
If you have short or long sight, this is not a problem provided you wear prescription glasses or contact lenses to correct this.
If you would like to find out more about the research project and apply to take part then please complete and submit the form below. By completing the form you are giving us permission to pass on your details to the relevant research team.
Thank you.
Training boost for orthoptists
Future generations of orthoptists graduating from Sheffield University will be even better placed to help nystagmus patients thanks to a new £30,000 eye movement recording laboratory. Only two other universities (Liverpool and Glasgow Caledonian) train orthoptists, so Sheffield’s new facility will have big impact on the profession.
Within five years around 250 orthoptists will have trained in the lab, giving them enhanced skills in the diagnosis and management of nystagmus. This means that nystagmus patients in hospitals across the UK – and beyond – will benefit from the new facility. The lab will also help to diagnose patients with nystagmus in both Sheffield Children’s Hospital and the Royal Hallamshire Hospital.
As well as its role in training new orthoptists, the lab will enable orthoptists in Sheffield University to carry out research. They already plan to develop ways of assessing functional vision in children and adults with nystagmus. Sheffield will also investigate the effect of ageing in patients with nystagmus and whether additional visual stimulation could improve the vision of children with nystagmus.
The Nystagmus Network is contributing £10,000 to the new facility, thanks to a donation from the EBM Charitable Trust. Sheffield University and Health Education Yorkshire & Humber are also contributing £10,000 each. The investment confirms the UK as one of the leading countries in the world for nystagmus research. Nystagmus Network is already funding projects in Cardiff, Leicester, Moorfields (London), Plymouth and Southampton.
Separately, Nystagmus Network has awarded a £1,000 grant to Sheffield to develop a standardised nystagmus information pack for hospitals to give to patients, parents and carers. This project came about after a team of orthoptic lecturers and students took part in NN’s Newcastle Open Day in May.
Moorfields asks big questions
Moorfields Eye Hospital in London is looking for answers to two of the big questions in nystagmus. Firstly, what impact does nystagmus have on the developing vision of young children? And secondly, is there an optimal time for intervening with glasses or surgery?
The Moorfields project will study 30 infants with nystagmus and should be completed during 2017. This project is funded by Fight for Sight, the Giles Warman Foundation and the Nystagmus Network.
Moorfields is also benefitting from a separate £550 grant from the Nystagmus Network towards the purchase of diagnostic equipment for a new paediatric nystagmus clinic