Tag: Moorfields Eye Hospital

Are you in the team?

Team Nystagmus Network will be setting off to walk Eye to Eye at 11am on Sunday 10th March. You can choose to walk the 4 or 14 mile route.

Team Nystagmus Network sets off at 11am

Nystagmus Network trustees will be at the starting point to wave you off.

Ella and Sam are on the team, here’s why:

“Sam and I will be walking in the hope that the money we raise will fund life-changing research for those of us living with nystagmus and the future generations the Nystagmus Network will support.”

Set up your Justgiving page

Click here to join the team today then set up your Justgiving page and link it to the Nystagmus Network to ensure that every penny you raise goes to nystagmus research.

THANK YOU!

Fancy a stroll through London?

At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye Walk between the iconic London Eye on London’s South Bank to the equally famous and symbolic eye sign outside Moorfields Eye Hospital.

Please join us.

We’re doing this to raise much needed funding for ground breaking research into nystagmus at Moorfields and University College, London.

You can choose to take the 4 mile or the 14 mile walk. It’s up to you.

To walk with Team Nystagmus you need to set off at 11am.

Bring the family, bring the dog and help the nystagmus cause by raising lots of lovely sponsorship.

Please set up a Justgiving page for your sponsors and link it to the Nystagmus Network.

Registration is now open. It’s free for accompanied children under 16 and is just £20 for the 14 mile route and £15 for the four mile route. We suggest a minimum sponsorship of £100 for every participating adult.

Moorfields will supply:

  • Route maps
  • T-shirts for every participant
  • Fundraising support
  • Refreshments, medal, goodie bag and celebration at the end of the walk at their brand new Ect Venue, (Belvedere Road, London, SE1 7PB) next to the London Eye!

Please sign up today!

Patient Information Day – Moorfields

Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support services available.

There will be talks and lots of discussion about the way forward for nystagmus patient care and treatment.

The Nystagmus Network’s Sue will also be there.

Please click here for more details and to register for your FREE place.

 

Could you walk from Eye to Eye for nystagmus?

At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye Walk between the iconic London Eye on London’s South Bank to the equally famous and symbolic eye sign outside Moorfields Eye Hospital.

Please join us.

We’re doing this to raise much needed funding for ground breaking research into nystagmus at Moorfields and University College, London.

You can choose to take the 4 mile or the 14 mile walk. It’s up to you.

Bring the family, bring the dog and help the nystagmus cause by raising lots of lovely sponsorship.

Registration is now open. It’s free for accompanied children under 16 and is just £20 for the 14 mile route and £15 for the four mile route. We suggest a minimum sponsorship of £100 for every participating adult.

Moorfields will supply:

  • Route maps
  • T-shirts for every participant
  • Fundraising support
  • Refreshments, medal, goodie bag and celebration at the end of the walk at their brand new Ect Venue, (Belvedere Road, London, SE1 7PB) next to the London Eye!

Please sign up today!

True dedication!

Nystagmus Network trustees Claire Brinn and Vicky Pitman and Vicky’s husband, Richard finally completed their abseil for nystagmus research on Sunday, 28 October. They scaled down the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park.

The final 3 of our fabulous team of 10 abseilers finally took their leap for nystagmus, following postponements due to the very British weather.

It was a chilly day, but at least there were no high winds or lashing rain to deter them this time and our courageous trio were all smiles for the camera.

The Nystagmus Network is indebted to all 10 of our abseilers who are all now safely back on the ground: Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky. Together they have raised around £7,500 for ground breaking nystagmus research at Moorfields and UCL.

They did it – at last!

The unpredictable British weather finally came good for our intrepid (postponed) abseilers on Sunday 21 September, when Clare A, Glen and Matt finally completed their abseil from the viewing platform of the ArcelorMittal Orbit for nystagmus research.

With not a cloud in the sky nor any hint of wind and rain, our intrepid 3 enjoyed the experience of a lifetime and helped secure the future of ground-breaking nystagmus research at Moorfields and University College, London.

WELL DONE and THANK YOU!

Congratulations all of you. Now you really can say ‘I got the T-shirt!’.

Nerves of steel!

Four of our six remaining Nystagmus Network abseilers will finally (fingers crossed!) make their leap for nystagmus research this Sunday, 21 October, from the viewing platform at the top of the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park.

Vicky, Tom, Vanessa and Richard B managed to complete their abseil last month.

For the remaining Nystagmus Network team members the abseil was postponed last month, and then again earlier this month, due to high winds and heavy rains – not exactly the ideal weather conditions to be dangling by a rope from the UK’s tallest piece of public art.

So we’d just like to say a huge well done to Claire A, Claire B, Glen and Matt, for keeping their nerve and for continuing to raise sponsorship as they waited for their big moment. Every penny raised is going directly into groundbreaking nystagmus research happening right now at Moorfields Eye Hospital and University College, London.

It’s almost here (we hope)!

Everyone at Nystagmus Network will be thinking of you and the whole nystagmus community will be cheering you on.

Richard P and Vicky hope to make their leap for nystagmus on 28 October.

 

Walk Eye to Eye for nystagmus research

Supporters of the Nystagmus Network and anyone keen to raise money for nystagmus research at Moorfields Eye Hospital and University College, London can now sign up to walk Eye to Eye in March 2019.

The Eye to Eye walk takes a route (you can choose either 4 or 14 miles) from the London Eye on the South Bank of the Thames to the iconic eye sign outside Moorfields Eye Hospital.

Join Team Nystagmus Network for the walk to make sure that every penny you raise in sponsorship goes directly into ground-breaking nystagmus research at Moorfields and UCL.

We’ll be setting off at 11am on Sunday 10 March. Bring the family, bring the dog! Everyone welcome.

Please sign up today!

Nystagmus Patient Information Day

The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November.

Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support services available.

The structure of the day will involve:

  • An overview of nystagmus and current management
  • A patient journey
  • Interactive discussion focusing on the needs of the patient
  • Talks from Visual Impairment and Low Visual Aids teams

Sue, from the Nystagmus Network, will be at the event.

Lunch and coffee will be provided, and places (free of charge) will be allocated on a first come, first served basis.

Tickets close: midnight Friday 9 November

For enquires please contact Maria Theodorou at: [email protected].

This day is funded by Friends of Moorfields with support from Nystagmus Network.

We will not be discussing children services at this meeting. Some of the content and discussions had may not be suitable for children. We are unable to offer childcare facilities on the day.

To book your place, please click here.

The event is hosted by NIHR Biomedical Research Centre at Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology.

The Eye2Eye walk for nystagmus research

In partnership with Moorfields Eye Charity, the Nystagmus Network is recruiting a team to take part in the Eye2Eye walk from the London Eye to the iconic eye on the front of the Moorfields Eye Hospital building. The walk takes place on Sunday 10 March 2019 and you can choose to walk 4 or 14 miles. Bring the children, bring the dog! Have a great day out and help us raise lots of money for nystagmus research at Moorfields and University College, London. To apply, please email us at [email protected] or call 01427 718093.