nystagmus network – Page 9 – Nystagmus Network

James, wearing sunglasses, smiles for the camera. His wife stands beside him holding a small child wearing a blue T-shirt.

James’s nystagmus story

This Nystagmus Awareness Day we’re asking you to share your story. This is James’s story. You can share your story here Until my son Sullivan was born, we as a … Continue reading James’s nystagmus story

A person wearing a doctor's white coat is testing a patient's eyes using clinical equipment.

The Fight for Sight/Nystagmus Network Small Grant Award

We are delighted to announce that the Nystagmus Network has jointly awarded two new nystagmus research grant awards with our funding partners Fight for Sight. The two successful applicants are … Continue reading The Fight for Sight/Nystagmus Network Small Grant Award

L-R Peter Greenwood, Marsha De Cordova MP (holding Nystagmus Network T-shirt, Harshal Kubavat.

Nystagmus Care Pathway published

Publication of Clinical Practice Points for managing nystagmus in childhood The Nystagmus Network has welcomed the publication of new guidance on the management of nystagmus in children by the Royal … Continue reading Nystagmus Care Pathway published

Richard speaks from a podium, wearing a white Nystagmus Network T-shirt.

Thank you, Richard

We are sorry to share the sad news that Richard Wilson, Chairman of the Nystagmus Network from 2011 to 2019, passed away over the Easter weekend. Richard’s contribution to the … Continue reading Thank you, Richard

Sue wears a Nystagmus Network T-shirt and sits at her exhibition table.

Sue at VIEW

Nystagmus Network’s Sue Ricketts travelled to Birmingham last week for the annual conference of VIEW, the national body representing Qualified Teachers of Visually Impaired children and young people (QTVIs). Delegates … Continue reading Sue at VIEW

Becky is wearing a yellow coat and stands beside a table with laptop and phone.

Parents and carers get together

Parents and carers of children and young people with nystagmus are warmly invited to our first Parents’ Get Together of the year. We are delighted to share that Becky Hyams … Continue reading Parents and carers get together

A crowded street scene, with lots of blurring so that individual faces cannot be seen clearly.

Support for visually impaired jobseekers

RNIB and BlindAmbition present a 16-week series of free weekly webinars to support visually impaired job seekers achieve the next stage in their career: finding a new role, entering employment, … Continue reading Support for visually impaired jobseekers

A young person choses a book from a shelf.

Could you help shape the direction of eye research in the UK?

Eye Research Priority Survey Your input is needed into a new survey designed to refresh the James Lind Alliance Sight Loss and Vision research priorities* that were first published in 2013. Despite … Continue reading Could you help shape the direction of eye research in the UK?

A poster for The Great Winter Get Together, #PlacesForConnection, 16-29 January 2023, with graphic images of a cuppa, buildings and a screen.

A winter warmer for darker days

We’re taking part in the #TheGreatGetTogether – please join us We are hosting two online get togethers this month. For people living with Acquired Nystagmus our online get together takes … Continue reading A winter warmer for darker days

Could you help us with Donorfy?

Volunteer Donorfy CRM Developer and Trainer What will you be doing? What are we looking for? Experience and expertise in implementation of a CRM (preferably Donorfy) within a not for … Continue reading Could you help us with Donorfy?