They did it!


We’ve just heard that James and his little brother, Thomas, have successfully completed their summer fundraising challenge to raise a phenomenal £677 for two charities. James (8) and Thomas (5) have spent their summer holidays walking 118 miles in aid of Chromosome 18 Registry and Research Society Europe and the Nystagmus Network. Why these charities? … Continue reading They did it!

Glen’s taking the abseil challenge. Could you?


Glen is a member of the Nystagmus Network and a true friend of the charity. We were privileged to meet him last year when he led a workshop at Open Day on building social networks. You can read all about Glen’s adventures as a successful young man about London, who just happens to have aniridia … Continue reading Glen’s taking the abseil challenge. Could you?

Claire’s taking the leap for nystagmus. Want to join her?


Introducing Claire, the next member of Team Nystagmus Network Abseil. Claire is a keen rock climber, so abseiling her way down the ArcelorMittal Orbit is going to be a walk in the park! She’s doing it all to raise money for nystagmus research at Moorfields and UCL. If you’d like to join Claire, please contact … Continue reading Claire’s taking the leap for nystagmus. Want to join her?

Seeing Beyond The Eyes


The Nystagmus Network is pleased to share this guest post from our friends at Visualise Training and Consultancy. The new guide ‘Seeing Beyond The Eyes’ includes details of the charity’s services and our contact details so that patients with nystagmus can find us easily for information and support. Eye care and Health Professionals armed with … Continue reading Seeing Beyond The Eyes

Visual impairment and mental health


Children aged between 8 and 11 years old who live with a visual impairment are three times more likely to develop a mental health problem than children with no visual impairment, according to new research. The Nystagmus Network has been aware of this for a long time and always highlights the social and emotional aspects … Continue reading Visual impairment and mental health

James and Thomas’s Summer Challenge


James and his little brother, Thomas, are taking on a very special challenge this summer to raise money for two charities very close to the family’s heart. James (8) and Thomas (5) have decided to challenge themselves to walk 118 miles throughout August to raise money for Chromosome 18 Registry and Research Society Europe and … Continue reading James and Thomas’s Summer Challenge

Celebrating National Sunglasses Day!


As photophobia is a frequent accompaniment to nystagmus and ocular albinism, we’re happy to join in a day of celebrating sunglasses and raising awareness of the importance of protecting your eyes, whether you have nystagmus or not, from damaging UV rays. We’re enjoying some beautiful, warm sunny weather across the whole of the UK right … Continue reading Celebrating National Sunglasses Day!

How amazing is Bradley


We couldn’t resist one more ‘amazing’ nystagmus success story. Not everyone with nystagmus can drive, but Bradley has turned driving into his philosophy on life. My name is Bradley. I’ve had nystagmus since birth. My parents found out about it when I was 4. As a child, I was in and out of hospitals. It … Continue reading How amazing is Bradley