On Nystagmus Awareness Day 2018, the Nystagmus Network’s Information and Development Manager, Sue, shared her nystagmus story and explained why it’s so important to continue to raise awareness of nystagmus. … Continue reading Sue shares her personal nystagmus story
A guest post from Sara’s Mum … This is my daughter Sara. She’s 17 now and born with albinism and nystagmus. Her sight is badly affected, but nothing stops her!!! … Continue reading How amazing is Sara?
Amanda is a long time supporter of the Nystagmus Network UK and our unofficial US spokesperson. As a professional freelance writer, who also has nystagmus, she is well placed to … Continue reading How amazing is Amanda
Here’s Gary’s sporty nystagmus success story … Since 2014 I’ve been playing county cricket for Warwickshire Visually Impaired Cricket Club. The club comprises players of all ages (my shirt number … Continue reading How amazing is Gary?
Maureen tells her own nystagmus success story … I started school in 1945. They didn’t have the pre-school checks they have now. No-one had noticed anything out of the ordinary. … Continue reading How amazing is Maureen?
Like lots of children, Macy has nystagmus as well as more serious health problems. Here’s her story, as told by her Mum … In January 2016, Macy our baby girl … Continue reading How amazing is Macy?
A nystagmus Dad writes: Michael is 19. In 1999 he was diagnosed with congenital idiopathic nystagmus at around 3 months of age. We immediately did an internet search to find … Continue reading How amazing is Michael?
If you ever visit our Facebook page you will know Chris. She’s very knowledgeable about nystagmus – and sight impairment generally and so generous to everyone with her time and support. … Continue reading How amazing is Chris?
Here’s Dave’s nystagmus success story, in his own words. I have congenital nystagmus. The main limitation I have experienced is not being able to drive. However, at the age of … Continue reading How amazing is Dave?
A Mum’s story: Denni-Leigh was born weighing 5.15lbs on a sunny June morning. She was a perfectly beautiful newborn baby. Only at about 4 weeks old the health visitor noticed … Continue reading How amazing is Denni-Leigh?
