We are delighted to announce that 16 year old Wilson is the winner of our Nystagmus Awareness Day photography competition: The View from my Window. Wilson is very pleased to … Continue reading Wilson’s winning window
Tag: nystagmus
Research participation opportunity
People with nystagmus are being invited to contribute to medical research by sharing their experiences of accessing a patient information pack, designed to support people living with the little known … Continue reading Research participation opportunity
Richard Osman to voice Radio 4 appeal
The Nystagmus Network is delighted to announce that it has been granted a BBC Radio 4 charity appeal. The appeal will be presented by well known TV presenter, broadcaster and … Continue reading Richard Osman to voice Radio 4 appeal
Homeschooling and nystagmus
A Guest Post by author and nystagmus Mum, Nadine Neckles So the world has turned on its head and what we once considered normal and safe has morphed into anxiety … Continue reading Homeschooling and nystagmus
Nystagmus in lockdown
In this Guest Post, Neil writes about his experiences of lockdown as a visually impaired person. I’m registered partially sighted and diagnosed with nystagmus and ocular albinism from birth. Both … Continue reading Nystagmus in lockdown
Nystagmus Awareness Day 20 June 20
Nystagmus Awareness Day – 20 June 2020 It’s national and international Nystagmus Awareness Day on Saturday 20 June 2020. We may all be staying at home this year, but we … Continue reading Nystagmus Awareness Day 20 June 20
Nystagmus is … a guide for adults
A fabulous new publication, Nystagmus is … a guide for adults, is now available FREE from our online shop. The booklet is inspired by the wonderful Roger (pictured), who first contacted us … Continue reading Nystagmus is … a guide for adults
A YouGov nystagmus awareness survey
The Nystagmus Network commissioned a YouGov survey in May 2020, ahead of Nystagmus Awareness Day on 20 June, to see how aware the UK population is of nystagmus. The survey … Continue reading A YouGov nystagmus awareness survey
The Nystagmus Network receives £8,000 from the National Lottery to increase our support services
The Nystagmus Network is delighted to have been awarded just over £8,000 in National Lottery funding to underpin its work supporting adults with nystagmus. The charity will use the funding … Continue reading The Nystagmus Network receives £8,000 from the National Lottery to increase our support services
Nystagmus Network launches webinar series for clinicians
Nystagmus Network launches online CET webinars for eye-care professionals The Nystagmus Network charity was founded in 1984 to support patients living with the condition. They currently have 500 members but … Continue reading Nystagmus Network launches webinar series for clinicians