Skip to content
Nystagmus Network eye logo with Registered Trade Mark symbol

Nystagmus Network

Supporting people living with nystagmus

  • Information
    • Congenital Nystagmus
    • Acquired Nystagmus
  • Support
  • Awareness
  • Research
  • Get involved
  • Shop
  • Health Care Practitioners
  • Join us
  • News
  • DONATE
Search

Tag: nystagmus

Free run places


Would you like to take up a FREE run place for the Nystagmus Network? We have places in the London Vitality 10k on Monday 27 May (Bank Holiday Monday) and are about … Continue reading Free run places

Posted on December 7, 2018December 6, 2018Author Sue RickettsCategories Advent Calendar, FundraisingTags free run places, nystagmus, sponsored run

Merton Vision Event


Merton Vision, London will be holding a patient information day tomorrow, Friday 23 November, from 12 noon to 4pm. Please come along to find out more about nystagmus and albinism. The … Continue reading Merton Vision Event

Posted on November 22, 2018Author Sue RickettsCategories Events, Information and Support, Living with nystagmusTags albinism, Merton Vision, nystagmus

Nystagmus Patient Information Day


The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November. Moorfields Eye Hospital is holding an information day for … Continue reading Nystagmus Patient Information Day

Posted on October 15, 2018Author Sue RickettsCategories Events, Information and Support, Living with nystagmusTags adults, Moorfields Eye Hospital, nystagmus, patient information

A new video on nystagmus


Published today as part of National Eye Health Week, a new YouTube video by Emily Davison, also known online as the Fashioneyesta, tells what nystagmus is and how it affects … Continue reading A new video on nystagmus

Posted on September 25, 2018Author Sue RickettsCategories Guest posts, Information and Support, Living with nystagmusTags Emily Davison, Fasioneyesta, nystagmus, video

Yorkshire 3 Peaks – completed!


Steph and her team completed the Yorkshire 3 Peaks Challenge on Saturday in 11 hours 45 minutes. Well done, team! They were doing this in honour of Steph’s young son, … Continue reading Yorkshire 3 Peaks – completed!

Posted on September 24, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags bucket list, nystagmus, Yorkshire 3 Peaks Challenge

The abseil is this weekend!


This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal … Continue reading The abseil is this weekend!

Posted on September 20, 2018Author Sue RickettsCategories Charity highlights, Fundraising, researchTags abseil, Moorfields Eye Hospital, nystagmus, research, University College London

Don’t forget us, please!


As national ‘Remember a Charity Week’ begins, the Nystagmus Network would like to make a plea to all our members and supporters to consider remembering us in your wills. We … Continue reading Don’t forget us, please!

Posted on September 10, 2018Author Sue RickettsCategories Legacies and gifts in willsTags gifts in wills, legacies, nystagmus, nystagmus research

They did it!


We’ve just heard that James and his little brother, Thomas, have successfully completed their summer fundraising challenge to raise a phenomenal £677 for two charities. James (8) and Thomas (5) … Continue reading They did it!

Posted on August 31, 2018Author Sue RickettsCategories FundraisingTags chromosome 18q-, nystagmus

Glen’s taking the abseil challenge. Could you?


Glen is a member of the Nystagmus Network and a true friend of the charity. We were privileged to meet him last year when he led a workshop at Open … Continue reading Glen’s taking the abseil challenge. Could you?

Posted on August 17, 2018Author Sue RickettsCategories FundraisingTags abseil, fundraising, Moorfields Eye Hospital, nystagmus, research

Claire’s taking the leap for nystagmus. Want to join her?


Introducing Claire, the next member of Team Nystagmus Network Abseil. Claire is a keen rock climber, so abseiling her way down the ArcelorMittal Orbit is going to be a walk … Continue reading Claire’s taking the leap for nystagmus. Want to join her?

Posted on August 17, 2018Author Sue RickettsCategories FundraisingTags abseil, fundraising, Moorfields Eye Hospital, nystagmus, research

Posts pagination

Previous page Page 1 … Page 31 Page 32 Page 33 … Page 41 Next page

Contact us

info@nystagmusnet.org

01427 718093

6 Lancaster Gardens Kingston upon Thames
KT2 5NL

Policies

  • Privacy policy
  • Diversity statement
  • Complaints procedure
  • Sight Loss Sector Charter

Legal

  • Annual report

Registered charity number 1180450

Nystagmus Network is a registered Trade Mark

Nystagmus Network on Foundation Info.

Donate

Social media

  • Facebook
  • Instagram
  • Youtube
  • Linkedin


Privacy Policy © The Nystagmus Network®. All rights reserved. Registered Charity Number in England and Wales - 1180450
  • Facebook
  • Instagram
  • Youtube
  • Linkedin