This Nystagmus Awareness Day we’re asking people to share their story. You can share your story here John’s nystagmus story is a letter to his 9-year-old self To the best … Continue reading John’s nystagmus story
Author: Sue Ricketts
Sharon’s nystagmus story
This Nystagmus Awareness Day we’re asking you to share your story. You can share your nystagmus story here This is Sharon’s story … My nystagmus story started October 2017 when … Continue reading Sharon’s nystagmus story
James’s nystagmus story
This Nystagmus Awareness Day we’re asking you to share your story. This is James’s story. You can share your story here Until my son Sullivan was born, we as a … Continue reading James’s nystagmus story
The Fight for Sight/Nystagmus Network Small Grant Award
We are delighted to announce that the Nystagmus Network has jointly awarded two new nystagmus research grant awards with our funding partners Fight for Sight. The two successful applicants are … Continue reading The Fight for Sight/Nystagmus Network Small Grant Award
Nystagmus Care Pathway published
Publication of Clinical Practice Points for managing nystagmus in childhood The Nystagmus Network has welcomed the publication of new guidance on the management of nystagmus in children by the Royal … Continue reading Nystagmus Care Pathway published
Thank you, Richard
We are sorry to share the sad news that Richard Wilson, Chairman of the Nystagmus Network from 2011 to 2019, passed away over the Easter weekend. Richard’s contribution to the … Continue reading Thank you, Richard
Sue at VIEW
Nystagmus Network’s Sue Ricketts travelled to Birmingham last week for the annual conference of VIEW, the national body representing Qualified Teachers of Visually Impaired children and young people (QTVIs). Delegates … Continue reading Sue at VIEW
Parents and carers get together
Parents and carers of children and young people with nystagmus are warmly invited to our first Parents’ Get Together of the year. We are delighted to share that Becky Hyams … Continue reading Parents and carers get together
Support for visually impaired jobseekers
RNIB and BlindAmbition present a 16-week series of free weekly webinars to support visually impaired job seekers achieve the next stage in their career: finding a new role, entering employment, … Continue reading Support for visually impaired jobseekers
Could you help shape the direction of eye research in the UK?
Eye Research Priority Survey Your input is needed into a new survey designed to refresh the James Lind Alliance Sight Loss and Vision research priorities* that were first published in 2013. Despite … Continue reading Could you help shape the direction of eye research in the UK?