Are you taking the time at home as an opportunity to clean out some cupboards? Have you been decluttering? What are you going to do with all your stuff? Sell … Continue reading Nystagmus Network on ebay
Author: Sue Ricketts
Does nystagmus or ocular albinism affect my immunity?
Lots of you are asking us this question and some of you have received notification letters from the government. We asked for expert clinical advice and received the following statement: … Continue reading Does nystagmus or ocular albinism affect my immunity?
A round up of online learning
The Nystagmus Network has put together a handy list of tried and tested online learning resources for parents and carers. It’s a list that’s growing day by day. If you’d … Continue reading A round up of online learning
Looking good, Mike!
Can you believe that it’s THREE MONTHS TODAY since Mike set off on his crazy ‘wiggly walk’ the entire length of New Zealand to raise money for nystagmus research? And … Continue reading Looking good, Mike!
Thank you!
A huge thank you to all our #easyfundraising shoppers for your support. Together, you’ve helped us raise £65.40 in February simply by shopping through easyfundraising. Thank you so much! Sign … Continue reading Thank you!
Research into decision making for genetic testing
A team at Cardiff University is conducting a study to identify the factors that influence the decisions made by genetic counselling patients about proceeding with genetic tests. They are looking to recruit … Continue reading Research into decision making for genetic testing
Parents of adolescents with nystagmus: research participation opportunity
Ifigeneia Manitsa BEd, MSc, AFHEA (pictured) is a Psychology Researcher at Kingston University London. Her research is about the social and academic inclusion of adolescents with and without visual impairments. Ifigeneia has … Continue reading Parents of adolescents with nystagmus: research participation opportunity
2020 Year of Vision
The Nystagmus Network has signed up to the Vision UK 2020 Year of Vision 5 priorities. Vision UK is the independent partnership organisation which works for the benefit of blind … Continue reading 2020 Year of Vision
Circadian Therapeutics Sleep Health Survey
Circadian Therapeutics are seeking vision-impaired individuals between 18 – 70 years to participate in a research project exploring experiences of sleep and daily rhythm disruption. In partnership with the Blind … Continue reading Circadian Therapeutics Sleep Health Survey
Research on nystagmus and glaucoma
As previously reported here, the Research Unit for Nystagmus at Cardiff University has been looking for people with nystagmus to take part in a survey that aimed to further their … Continue reading Research on nystagmus and glaucoma