In the run up to Nystagmus Awareness Day on 20 June, we published lots of your nystagmus success stories in our campaign “How amazing are you?” One of the most popular stories … Continue reading Nystagmus is …
Author: Sue Ricketts
Ski with Menna and Jen
With thanks to our friends, the Outspan Rebels VI ski team, we’re offering you the chance, this August, to try out skiing for yourself at Snozone Milton Keynes. Menna Fitzpatrick … Continue reading Ski with Menna and Jen
Mike’s wiggly walk – video update
Mike has nystagmus and so does his young nephew, Archie. Later this year and well into 2020, Mike will be walking the length of New Zealand to help find a … Continue reading Mike’s wiggly walk – video update
formidAbility
GUEST POST, by Joanne Roughton-Arnold I am a member of the Nystagmus Network. I have ocular albinism with subsequent congenital nystagmus. I am a professional opera singer. Inspired by my … Continue reading formidAbility
Howzat?
Nystagmus Network supporter, Phil Morris organised a charity cricket match on Sunday 30th June 2019. The teams were Phil’s own Hendrefoilan Hedgehogs versus an Invitational 11 from a number of … Continue reading Howzat?
Look on the bright side of being registered blind
GUEST POST: Daniel Williams takes a tongue in cheek look at the benefits of being registered blind. It isn’t all bad – you won’t have initials after your name, but … Continue reading Look on the bright side of being registered blind
Congenital nystagmus and reading
At the recent celebration for Professor Irene Gottlob at the University of Leicester, Dr Frank Proudlock spoke about nystagmus and reading. Frank commented that people with congenital nystagmus can read … Continue reading Congenital nystagmus and reading
Research Strategy 2019 to 2022
The Nystagmus Network trustees publish today their Research Strategy document for the next 3 years of nystagmus research, collaborations and funding arrangements. CLICK HERE to download your free copy today. … Continue reading Research Strategy 2019 to 2022
Free Open Day places for Cardiff families
The Nystagmus Network has been awarded a small grant by the Millennium Stadium Charitable Trust to sponsor a number of free places at Open Day 2019 for Cardiff families. The … Continue reading Free Open Day places for Cardiff families
Jeans for nystagmus genes
Children with nystagmus receive a grant from Jeans For Genes Day 2019 In July 2019, the Nystagmus Network is celebrating after hearing the news they will receive a grant from … Continue reading Jeans for nystagmus genes