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Supporting people living with nystagmus

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Author: Sue Ricketts

Wobbly Eyes in German


The Nystagmus Network UK sends huge congratulations to Hanna and her fellow trustees for the successful launch, at the end of 2018, of the German Nystagmus Netzwerk. Our two organisations … Continue reading Wobbly Eyes in German

Posted on January 4, 2019January 3, 2019Author Sue RickettsCategories Charity highlights, Information and Support, News, Open Day 2018Tags German Nystagmus Netzwerk, Wackelige Augen, Wobbly Eyes
Nystagmus Network members hold up their voting cards.

Have you got our new number?


The registered charity number for the Nystagmus Network has changed. Our new number is 1180450. This marks our successful transition from humble charity to a Charitable Incorporated Organisation, as voted … Continue reading Have you got our new number?

Posted on January 2, 2019January 2, 2019Author Sue RickettsCategories NewsTags AGM, membership, Registered charity number

Our support


Our final advent calendar gift is something we offer every day of the year. Thank you to all our members, fundraisers and supporters who make it all possible. Happy Christmas!

Posted on December 24, 2018December 14, 2018Author Sue RickettsCategories Advent Calendar, Information and Support, Nystagmus is ... this Christmas, Thank yous

Nystagmus, the way we see it


If you’ve ever wondered how a person with nystagmus sees or how the condition affects their sight, listen to Richard, Harriet and Will explain in our video. You can show … Continue reading Nystagmus, the way we see it

Posted on December 23, 2018December 14, 2018Author Sue RickettsCategories Advent Calendar, Information and Support, Living with nystagmus, Nystagmus is ... this ChristmasTags nystagmus, Nystagmus - the way we see it, Richard Osman, video

Our staff team


When you contact the Nystagmus Network, by phone, email or on social media, it will be one of our 3 staff members who responds. Introducing our staff team.

Posted on December 22, 2018December 14, 2018Author Sue RickettsCategories Advent Calendar, Nystagmus is ... this ChristmasTags staff

Nystagmus question on Fifteen to One


If you happened to be watching popular Channel 4 TV quiz show, Fifteen to One on Wednesday 19th December and were paying very close attention you will have heard a … Continue reading Nystagmus question on Fifteen to One

Posted on December 21, 2018December 21, 2018Author Sue RickettsCategories NewsTags awareness, Fifteen to One, nystagmus, Sandi Toksvig

Our trustees and our founder, Vivien


Without the dedication of just one woman, Vivien Jones, our Founder and Honorary President, the Nystagmus Network would not exist. Vivien is supported by a strong team of Trustees, all … Continue reading Our trustees and our founder, Vivien

Posted on December 21, 2018December 14, 2018Author Sue RickettsCategories Advent Calendar, Nystagmus is ... this ChristmasTags Founder, trustees, Vivien Jones

Book a talk about nystagmus


Nystagmus Network staff members will visit your clinic, school or group to deliver a talk about nystagmus and the work of the charity. If we can’t make it in person … Continue reading Book a talk about nystagmus

Posted on December 20, 2018December 14, 2018Author Sue RickettsCategories Advent Calendar, Nystagmus is ... this Christmas

Free wristbands – today only!


Normally our wristbands are 99p each, but today we’re offering you, as part of our advent calendar, 5 FREE wristbands. you just need to pay £1 to cover p+p. Order … Continue reading Free wristbands – today only!

Posted on December 19, 2018December 14, 2018Author Sue RickettsCategories Advent Calendar, Nystagmus is ... this ChristmasTags wristbands

Order your free leaflets and cards


The Nystagmus Network distributes leaflets, postcards and charity business cards to anyone who needs them to signpost people for support. Contact us today to order your supply.

Posted on December 18, 2018December 14, 2018Author Sue RickettsCategories Advent Calendar, Information and Support, Nystagmus is ... this Christmas

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