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Supporting people living with nystagmus

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Author: Sue Ricketts

Manchester nystagmus network


The next meeting of our new North West regional group will take place on Saturday 26 January in Manchester. Nystagmus Network trustee, Marie Turnbull will once again be your host … Continue reading Manchester nystagmus network

Posted on January 9, 2019March 22, 2024Author Sue RickettsCategories Events, Information and Support, Living with nystagmus, Local GroupsTags Manchester, Manchester nystagmus network, Marie Turnbull, meet up

Run the Oxford Half Marathon


If you fancy running the Oxford Half Marathon for the Nystagmus Network this October you can enter the ballot for a free place from today. Click here for a chance … Continue reading Run the Oxford Half Marathon

Posted on January 7, 2019January 4, 2019Author Sue RickettsCategories Fundraising

Guest post: Audio described tours at Tate


Dear Friends, This is a message from Marcus at Tate in which I would like to wish you a very happy new year, and to tell you about Tate’s Audio … Continue reading Guest post: Audio described tours at Tate

Posted on January 4, 2019January 4, 2019Author Sue RickettsCategories Events, Guest postsTags audio described, Tate

Wobbly Eyes in German


The Nystagmus Network UK sends huge congratulations to Hanna and her fellow trustees for the successful launch, at the end of 2018, of the German Nystagmus Netzwerk. Our two organisations … Continue reading Wobbly Eyes in German

Posted on January 4, 2019January 3, 2019Author Sue RickettsCategories Charity highlights, Information and Support, News, Open Day 2018Tags German Nystagmus Netzwerk, Wackelige Augen, Wobbly Eyes
Nystagmus Network members hold up their voting cards.

Have you got our new number?


The registered charity number for the Nystagmus Network has changed. Our new number is 1180450. This marks our successful transition from humble charity to a Charitable Incorporated Organisation, as voted … Continue reading Have you got our new number?

Posted on January 2, 2019January 2, 2019Author Sue RickettsCategories NewsTags AGM, membership, Registered charity number

Our support


Our final advent calendar gift is something we offer every day of the year. Thank you to all our members, fundraisers and supporters who make it all possible. Happy Christmas!

Posted on December 24, 2018December 14, 2018Author Sue RickettsCategories Advent Calendar, Information and Support, Nystagmus is ... this Christmas, Thank yous

Nystagmus, the way we see it


If you’ve ever wondered how a person with nystagmus sees or how the condition affects their sight, listen to Richard, Harriet and Will explain in our video. You can show … Continue reading Nystagmus, the way we see it

Posted on December 23, 2018December 14, 2018Author Sue RickettsCategories Advent Calendar, Information and Support, Living with nystagmus, Nystagmus is ... this ChristmasTags nystagmus, Nystagmus - the way we see it, Richard Osman, video

Our staff team


When you contact the Nystagmus Network, by phone, email or on social media, it will be one of our 3 staff members who responds. Introducing our staff team.

Posted on December 22, 2018December 14, 2018Author Sue RickettsCategories Advent Calendar, Nystagmus is ... this ChristmasTags staff

Nystagmus question on Fifteen to One


If you happened to be watching popular Channel 4 TV quiz show, Fifteen to One on Wednesday 19th December and were paying very close attention you will have heard a … Continue reading Nystagmus question on Fifteen to One

Posted on December 21, 2018December 21, 2018Author Sue RickettsCategories NewsTags awareness, Fifteen to One, nystagmus, Sandi Toksvig

Our trustees and our founder, Vivien


Without the dedication of just one woman, Vivien Jones, our Founder and Honorary President, the Nystagmus Network would not exist. Vivien is supported by a strong team of Trustees, all … Continue reading Our trustees and our founder, Vivien

Posted on December 21, 2018December 14, 2018Author Sue RickettsCategories Advent Calendar, Nystagmus is ... this ChristmasTags Founder, trustees, Vivien Jones

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