My son Alfie who is almost 10 has never let anything stand in his way despite now being blind in one eye and having Nystagmus. Alfie persevered in learning how to … Continue reading How amazing is Alfie?
Category: Fundraising
How amazing is Hannah?
When I first started school I really struggled to read. It took me months and months to read the first Harry Potter book for myself in large print. I got … Continue reading How amazing is Hannah?
How amazing is Freya?
I was born with nystagmus and always struggled at school both in the classroom and in PE. All throughout my education it’s been a continuous trip to the printer to … Continue reading How amazing is Freya?
Caaaaaaaaaaaake!!!
There are bound to be loads of bake sales for Nystagmus Awareness Day 2018 on 20 June, so we thought it would be a great idea to have some Nystagmus … Continue reading Caaaaaaaaaaaake!!!
Congratulations Peter and Sam
Nystagmus Network trustees Peter Greenwood and Sam Jones completed the London Vitality 10k on Bank Holiday Monday and raised over £1,000 between them for the charity. Nystagmus Network Chairman, Richard … Continue reading Congratulations Peter and Sam
Manchester half marathon places available
Would you like to run the Manchester half marathon this October to raise money for the Nystagmus Network? The race takes places on Sunday 14 October. It starts and finishes by … Continue reading Manchester half marathon places available
Sam to run London 10k for the Nystagmus Network
Sam Jones, Nystagmus Network trustee and runner, introduces himself. I was born in 1983 with Cone Dysfunction and Nystagmus. Because of me, my mother, Vivien Jones, founded the Nystagmus Network. … Continue reading Sam to run London 10k for the Nystagmus Network
Nystagmus in the open and the Big Blind Walk
On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs … Continue reading Nystagmus in the open and the Big Blind Walk
Nystagmus Awareness Day – for clinics
Please help us to promote national and international Nystagmus Awareness Day, on Wednesday 20 June, in clinics and hospitals all over the UK and the world. We have free to … Continue reading Nystagmus Awareness Day – for clinics
Nystagmus Awareness Day – for sports clubs
Calling all sports and athletics clubs – we want you to join us for ‘nystagmus in the open‘ on national and international Nystagmus Awareness Day on Wednesday 20 June. We … Continue reading Nystagmus Awareness Day – for sports clubs