The Nystagmus Network celebrates national and international Nystagmus Awareness Day each year on 20 June to spread the word about nystagmus.
Category: Nystagmus Awareness Day
Thank you, King Cross Surgery!
The Nystagmus Network is hugely grateful to King Cross Surgery in Halifax for their amazing support on Nystagmus Awareness Day 2018. Practice Manager, Heather, whose 8 year old son has … Continue reading Thank you, King Cross Surgery!
How amazing is Bradley
We couldn’t resist one more ‘amazing’ nystagmus success story. Not everyone with nystagmus can drive, but Bradley has turned driving into his philosophy on life. My name is Bradley. I’ve … Continue reading How amazing is Bradley
An inspiring meeting with David Katz
The day before Nystagmus Awareness Day 2018, Information and Development Manager, Sue, and trustee, Peter, travelled to London to meet a very inspirational man – internationally acclaimed ‘blind’ photographer, David … Continue reading An inspiring meeting with David Katz
Charity trustees meet Marsha
On the Tuesday of ‘wobbly week’ 2018, a group of trustees were invited to Parliament to meet with Marsha De Cordova MP, Shadow Minister for Disabilities. Marsha has nystagmus herself … Continue reading Charity trustees meet Marsha
Sue shares her personal nystagmus story
On Nystagmus Awareness Day 2018, the Nystagmus Network’s Information and Development Manager, Sue, shared her nystagmus story and explained why it’s so important to continue to raise awareness of nystagmus. … Continue reading Sue shares her personal nystagmus story
How amazing is Sara?
A guest post from Sara’s Mum … This is my daughter Sara. She’s 17 now and born with albinism and nystagmus. Her sight is badly affected, but nothing stops her!!! … Continue reading How amazing is Sara?
How amazing is Amanda
Amanda is a long time supporter of the Nystagmus Network UK and our unofficial US spokesperson. As a professional freelance writer, who also has nystagmus, she is well placed to … Continue reading How amazing is Amanda
How amazing is Gary?
Here’s Gary’s sporty nystagmus success story … Since 2014 I’ve been playing county cricket for Warwickshire Visually Impaired Cricket Club. The club comprises players of all ages (my shirt number … Continue reading How amazing is Gary?
Did you come to Snow Camp?
It was a fantastic event. There were so many amazing people there to inspire adults and children to get out on the slopes and enjoy the snow. David Katz was … Continue reading Did you come to Snow Camp?