My son Alfie who is almost 10 has never let anything stand in his way despite now being blind in one eye and having Nystagmus. Alfie persevered in learning how to … Continue reading How amazing is Alfie?
Category: Nystagmus Awareness Day
How amazing is Hannah?
When I first started school I really struggled to read. It took me months and months to read the first Harry Potter book for myself in large print. I got … Continue reading How amazing is Hannah?
How amazing is Ben?
Here’s an amazing story from a very proud mum. When my second son, Ben was born, from about 3 months we noticed there was something wrong with his eye movements. … Continue reading How amazing is Ben?
How amazing is Freya?
I was born with nystagmus and always struggled at school both in the classroom and in PE. All throughout my education it’s been a continuous trip to the printer to … Continue reading How amazing is Freya?
Caaaaaaaaaaaake!!!
There are bound to be loads of bake sales for Nystagmus Awareness Day 2018 on 20 June, so we thought it would be a great idea to have some Nystagmus … Continue reading Caaaaaaaaaaaake!!!
Sign up for the “Nystagmus in the Open” thunderclap!
At 12 midday on Wednesday 20 June, Nystagmus Awareness Day, we can get the whole world talking about nystagmus across Facebook and Twitter. All you need to do to take … Continue reading Sign up for the “Nystagmus in the Open” thunderclap!
How amazing are you?
Have you done something amazing, something you never thought possible, because you have nystagmus? Has your child exceeded all your expectations? If so, we want to hear from you. Last … Continue reading How amazing are you?
Nystagmus in the open and the Big Blind Walk
On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs … Continue reading Nystagmus in the open and the Big Blind Walk
Nystagmus Awareness Day – for clinics
Please help us to promote national and international Nystagmus Awareness Day, on Wednesday 20 June, in clinics and hospitals all over the UK and the world. We have free to … Continue reading Nystagmus Awareness Day – for clinics
Nystagmus Awareness Day – for schools
Schools can take part in Nystagmus Awareness Day, especially if there is a pupil who has nystagmus. Talking about nystagmus, celebrating ‘nystagmus in the open‘ will help us raise awareness … Continue reading Nystagmus Awareness Day – for schools