The Nystagmus Network, a UK charity dedicated to supporting individuals and families living with nystagmus for over 40 years, is pleased to announce the appointment of Marsha de Cordova MP … Continue reading Marsha de Cordova MP appointed ambassador to the Nystagmus Network
Forty years ago this month a young mother sat at her kitchen table with a notepad and pen as her infant son slept. She’d just received the devastating news that … Continue reading A Ruby Celebration at the House of Lords
The Nystagmus Network is delighted to announce that Justine Chan, who is currently studying medicine at the University of Cambridge, has won the Richard Wilson Essay Prize 2024. The charity … Continue reading Justine wins the Richard Wilson Prize 2024
On New Year’s Eve 1984 my parents went on their first date. And I guess that’s where my nystagmus story begins. My Dad had Nystagmus from birth but it wasn’t … Continue reading Claire’s 1984 Story
My name is Trish (Patricia). I was born in 1956. Nystagmus was virtually unknown back then. My parents struggled to keep me in mainstream school and I faced many challenges … Continue reading Patricia’s Story
I was diagnosed with nystagmus almost from birth and I had glasses from around 18 months. I attended regular state school and struggled to see, however my parents were keen … Continue reading Glen’s Story
This is Flynn. Flynn was diagnosed with congenital nystagmus at the age of 2. When Flynn was about 6 months old, our health visitor noticed something was not quite right. … Continue reading Flynn’s Story
I grew up knowing I was short-sighted but, other than that, I had a pretty normal childhood in a family with five brothers and two sisters. In school, I sat at the … Continue reading Jan’s 1984 Story
My name is Drew. Some may know me as DrewpyDesigns. I was born with albinism and nystagmus, but that’s not my full story. I’m a three-time TTT champion, self-employed as … Continue reading Drew’s Story
My name is Taylan. I’m 8 years old and I’m nearly 9. My mummy was really worried when she found out I had nystagmus. I have lots of hobbies and … Continue reading Taylan’s Story
