This week the video blog at the Nystagmus Network features the amazing Josh! Â Josh is a keen skier who loves to take part in ski competitions. However, he was … Continue reading No limits
Category: Posts
A mum with nystagmus shares her story
I made my first contribution to the Nystagmus Network Focus newsletter after much parental cajoling and days, weeks, months, if not years, of adolescent procrastination, in the mid-1990s. To save … Continue reading A mum with nystagmus shares her story
Fundraising for the Nystagmus Network
Our latest video blog features an interview by our very own Sue with two of the charity’s fundraisers! Gavin and Paula Birch recently held a fun day and football match … Continue reading Fundraising for the Nystagmus Network
Nystagmus and photography
Our third video blog has been recorded by Steve McKay who is a trustee at the Nystagmus Network! During the video Steve talks about how he took up photography and … Continue reading Nystagmus and photography
Check out our new nystagmus booklets!
One of our main objectives at the Nystagmus Network is to provide information and support to the nystagmus community. To achieve this we have been working hard reviewing all of … Continue reading Check out our new nystagmus booklets!
Sue’s journey at the Nystagmus Network
Our second video blog has been recorded by Sue Ricketts. Sue has been involved with the Nystagmus Network for many years and joined the charity as the Communication and Development … Continue reading Sue’s journey at the Nystagmus Network
Introducing the new Nystagmus Network blog
We are delighted to announce that the Nystagmus Network is launching its new blog! Check out the video above which gives you all the information you will need about what … Continue reading Introducing the new Nystagmus Network blog
Volunteer for the Nystagmus Network
The Nystagmus Network is on the look out for more volunteers to help us support our growing community! We believe that a peer-to-peer support model will make a huge impact … Continue reading Volunteer for the Nystagmus Network
Meet Lucie!
Hi. I’m Lucie from Hampshire. I’m 21 years old and I’ve had nystagmus and ocular albinism since birth. I wanted to offer some comforting words to any young people or … Continue reading Meet Lucie!
Mark’s story
I’m the youngest of three children and I think that helped a great deal in dealing with Nystagmus – at least I hope it did. Either that, or I was … Continue reading Mark’s story