One of our main objectives at the Nystagmus Network is to provide information and support to the nystagmus community. To achieve this we have been working hard reviewing all of … Continue reading Check out our new nystagmus booklets!
Category: Posts
Sue’s journey at the Nystagmus Network
Our second video blog has been recorded by Sue Ricketts. Sue has been involved with the Nystagmus Network for many years and joined the charity as the Communication and Development … Continue reading Sue’s journey at the Nystagmus Network
Introducing the new Nystagmus Network blog
We are delighted to announce that the Nystagmus Network is launching its new blog! Check out the video above which gives you all the information you will need about what … Continue reading Introducing the new Nystagmus Network blog
Volunteer for the Nystagmus Network
The Nystagmus Network is on the look out for more volunteers to help us support our growing community! We believe that a peer-to-peer support model will make a huge impact … Continue reading Volunteer for the Nystagmus Network
Meet Lucie!
Hi. I’m Lucie from Hampshire. I’m 21 years old and I’ve had nystagmus and ocular albinism since birth. I wanted to offer some comforting words to any young people or … Continue reading Meet Lucie!
Mark’s story
I’m the youngest of three children and I think that helped a great deal in dealing with Nystagmus – at least I hope it did. Either that, or I was … Continue reading Mark’s story
Sound tennis
have always enjoyed sport but often found that trying to take part was frustrating due to my nystagmus, particularly with sports that require seeing the movement of a ball and … Continue reading Sound tennis
Can people see past my wobbly eyes?
It’s a traumatic experience for parents when their baby is diagnosed with an unknown condition. Mine didn’t know what to do when the doctor told them that their little girl … Continue reading Can people see past my wobbly eyes?
I’m the parent I never thought I’d be
I had always planned on being a laid back parent. My son, born with perfect vision, had been a breeze. And then my daughter entered school. Even though she had … Continue reading I’m the parent I never thought I’d be
Wobble and me (part 2)
I’d be foolish to pretend that secondary school was a breeze with nystagmus. There were two ways to go about it; suffer in silence, or rise to the challenge. As … Continue reading Wobble and me (part 2)