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Supporting people living with nystagmus

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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

How amazing is Poppy?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Poppy has ocular albinism, nystagmus, astigmatism. … Continue reading How amazing is Poppy?

Posted on June 7, 2019June 6, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Nabin?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Nabin has had nystagmus since my … Continue reading How amazing is Nabin?

Posted on June 6, 2019June 6, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

A guide to a baby’s eyes


Often it’s a parent, close friend or family member who first discovers that there’s something different about a baby’s eyes. It could be nystagmus. Do you know the milestones in … Continue reading A guide to a baby’s eyes

Posted on June 5, 2019June 5, 2019Author Sue RickettsCategories Information and SupportTags baby, Look After Your Eyes

How amazing is Hanna?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Today we introduce our friend, Hanna … Continue reading How amazing is Hanna?

Posted on June 5, 2019June 5, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, Nystagmus heroes, PostsTags amazing nystagmus success stories, How amazing are you?

Sight Loss Councils survey


A guest post: Sight Loss Councils have a vision for change – we want blind and partially sighted people to have access to goods and services at the same level … Continue reading Sight Loss Councils survey

Posted on June 4, 2019June 4, 2019Author Sue RickettsCategories PostsTags Sight Loss Councils, survey

How amazing is Calum?


Once again, in the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s Calum’s story, by … Continue reading How amazing is Calum?

Posted on June 4, 2019June 4, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Caitlin?


Once again, in the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s Caitlin’s story: Despite … Continue reading How amazing is Caitlin?

Posted on June 3, 2019June 3, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

Open Day booking for Members is OPEN!


Members of the Nystagmus Network will by now have received their special link to our online booking platform and will be able to book their free adult and child places … Continue reading Open Day booking for Members is OPEN!

Posted on June 3, 2019June 3, 2019Author Sue RickettsCategories Members only, Open Day 2019

How amazing is Ben?


Once again, in the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Here’s Ben’s story, submitted … Continue reading How amazing is Ben?

Posted on June 1, 2019May 31, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags How amazing are you?
Acquired Nystagmus Group logo.

Our new support group for Acquired Nystagmus


The Nystagmus Network is contacted more and more often by people living with Acquired Nystagmus. Experience of this condition is very different from Congenital Nystagmus in a number of ways. … Continue reading Our new support group for Acquired Nystagmus

Posted on May 31, 2019June 3, 2019Author Sue RickettsCategories Information and Support, Living with nystagmus

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