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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

How amazing is Jane?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Jane believes that having a sense … Continue reading How amazing is Jane?

Posted on June 19, 2019June 19, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Alfie?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” To his parents, Alfie truly is … Continue reading How amazing is Alfie?

Posted on June 18, 2019June 18, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Claire?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Claire is doing a fundraising tandem … Continue reading How amazing is Claire?

Posted on June 17, 2019June 17, 2019Author Sue RickettsCategories Nystagmus Awareness Day, Nystagmus heroesTags amazing nystagmus success stories, How amazing are you?

Our wobbly week competition


It’s wobbly week! And it’s Nystagmus Awareness Day this Thursday, 20 June. We want to raise as much awareness of nystagmus as possible and make sure that everyone has a … Continue reading Our wobbly week competition

Posted on June 17, 2019June 17, 2019Author Sue RickettsCategories Charity highlights, Nystagmus Awareness Day, Posts
Mike explains nystagmus and benefits at Open Day.

How amazing is Mike?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” For those of you who don’t … Continue reading How amazing is Mike?

Posted on June 16, 2019June 14, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, Nystagmus heroesTags amazing nystagmus success stories, How amazing are you?

How amazing is Phebe?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Today Phebe tells her own nystagmus … Continue reading How amazing is Phebe?

Posted on June 14, 2019June 14, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, How amazing are you?

Join our Lottery


Please join the Nystagmus Network Lottery for your chance to win £25,000 every week! We receive 100% of the profit which goes to support everyone affected by nystagmus, raises awareness of … Continue reading Join our Lottery

Posted on June 14, 2019June 14, 2019Author Sue RickettsCategories FundraisingTags Lottery

Why we’re helping people with albinism to stand strong


A guest post from Roselle Potts, Chair of the Albinism Fellowship on International Albinism Awareness Day 2019. ‘The prejudice and struggles facing people with albinism are sadly as present as … Continue reading Why we’re helping people with albinism to stand strong

Posted on June 12, 2019June 12, 2019Author Sue RickettsCategories Guest postsTags Albinism Fellowship UK, IAAD, International Albinism Awareness Day

How amazing is Ursula?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Today Ursula shares her own amazing … Continue reading How amazing is Ursula?

Posted on June 12, 2019June 12, 2019Author Sue RickettsCategories Guest posts, Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

Let’s go VI skiing


With thanks to our friends, the Outspan Rebels VI ski team, we’re offering you the chance, once again, to try out skiing for yourself at Snozone Milton Keynes. Children, young … Continue reading Let’s go VI skiing

Posted on June 11, 2019June 11, 2019Author Sue RickettsCategories VI SkiingTags Outspan Rebels VI ski team

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