Here’s Dave’s nystagmus success story, in his own words. I have congenital nystagmus. The main limitation I have experienced is not being able to drive. However, at the age of … Continue reading How amazing is Dave?
A Mum’s story: Denni-Leigh was born weighing 5.15lbs on a sunny June morning. She was a perfectly beautiful newborn baby. Only at about 4 weeks old the health visitor noticed … Continue reading How amazing is Denni-Leigh?
Nystagmus Dad, Robin, writes: My 9 year old son, James, has OC Albinism and Nystagmus, but he and I started learning the guitar together about 3 years ago ( he … Continue reading How amazing is James?
Jac is running a 2.5k fun run this month to raise awareness of nystagmus and fundraise for the Nystagmus Network. His Mum and Dad didn’t find out Jac had nystagmus … Continue reading How amazing is Jac?
Ella’s Mum tells us about her 16 year old daughter, Ella, who has nystagmus and optic nerve hypoplasia. She has also had to endure major surgery to straighten her spine, … Continue reading How amazing is Ella?
The first Nystagmus Network Snow Camp of 2018 takes place this Sunday, 17 June, at Snozone Milton Keynes. Lots of families have signed up to enjoy a day of sledging … Continue reading Menna and Jen are coming to Snow Camp!
Here’s Vicki’s nystagmus success story … I have congenital nystagmus and ocular albinism and want to help to encourage other people to reach their potential. I graduated from Durham university … Continue reading How amazing is Vicki?
Ben’s Mum tells us: “I am incredibly proud of my son, Ben who is 10 and has nystagmus. He plays for the under 10s Winslow Tigers football team. Recently he … Continue reading How amazing is Ben?
We join our sister charity, Albinism Fellowship UK, today in celebrating Albinism Awareness Day, with a special guest blog post from AFUK Chair, Roselle Potts. Help us to raise positive … Continue reading Albinism Awareness Day
Hi there. I just wanted to share with you the amazing journey I’ve embarked on in Blind Tennis, a sport that has given me my freedom, my independence and my … Continue reading How amazing is Rosine?
