The Nystagmus Network is funding equipment and testing to underpin nystagmus research taking place at Cardiff University School of Optometry and Vision Sciences, in collaboration with the genetics research team … Continue reading Nystagmus research – a progress report
As photophobia is a frequent accompaniment to nystagmus and ocular albinism, we’re happy to join in a day of celebrating sunglasses and raising awareness of the importance of protecting your … Continue reading Celebrating National Sunglasses Day!
We couldn’t resist one more ‘amazing’ nystagmus success story. Not everyone with nystagmus can drive, but Bradley has turned driving into his philosophy on life. My name is Bradley. I’ve … Continue reading How amazing is Bradley
Our friends at VIEW need your help. VIEW is a registered charity, which represents Qualified Teachers of Visually Impaired children and young people (QTVIs). It exists to help support the education, development and opportunities … Continue reading 2018 exams access arrangements feedback
Could you take the plunge and abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park? It’s an exhilarating descent to … Continue reading Want to abseil at the Queen Elizabeth Olympic Park?
Every time you shop online you could be raising a donation for the Nystagmus Network, absolutely free. All you need to do is visit the Easy Fundraising website and click … Continue reading Sign up to Easy Fundraising for free donations
The day before Nystagmus Awareness Day 2018, Information and Development Manager, Sue, and trustee, Peter, travelled to London to meet a very inspirational man – internationally acclaimed ‘blind’ photographer, David … Continue reading An inspiring meeting with David Katz
On the Tuesday of ‘wobbly week’ 2018, a group of trustees were invited to Parliament to meet with Marsha De Cordova MP, Shadow Minister for Disabilities. Marsha has nystagmus herself … Continue reading Charity trustees meet Marsha
On Nystagmus Awareness Day 2018, the Nystagmus Network’s Information and Development Manager, Sue, shared her nystagmus story and explained why it’s so important to continue to raise awareness of nystagmus. … Continue reading Sue shares her personal nystagmus story
A guest post from Sara’s Mum … This is my daughter Sara. She’s 17 now and born with albinism and nystagmus. Her sight is badly affected, but nothing stops her!!! … Continue reading How amazing is Sara?
