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Tag: albinism

Roselle is coming to Open Day


Because there is such a close link between albinism and nystagmus, the Nystagmus Network works closely with Albinism Fellowship UK. Chair of AFUK, Roselle Potts, will be joining us this … Continue reading Roselle is coming to Open Day

Posted on September 4, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags albinism, Albinism Fellowship UK, ocular albinism, oculocutaneous albinism
Jay Self wearing scrubs.

Does albinism protect against AMD?


We are seeking potential research candidates on behalf of researchers in Southampton (Jay Self and Helena Lee) who must be over the age of 60 and have any form of … Continue reading Does albinism protect against AMD?

Posted on September 3, 2018June 26, 2019Author Sue RickettsCategories Posts, researchTags albinism, AMD, ocular albinism, University of Southampton
Jay Self wearing scrubs.

Researchers study whether albinism could protect against AMD


PRESS RELEASE ISSUED BY UNIVERSITY HOSPITAL SOUTHAMPTON NHS FOUNDATION TRUST 23 August 2018 Researchers in Southampton are in the early stages of a pioneering study which aims to discover if … Continue reading Researchers study whether albinism could protect against AMD

Posted on August 23, 2018Author Sue RickettsCategories researchTags albinism, AMD, Mr Jay Self, University of Southampton

Albinism Awareness Day


We join our sister charity, Albinism Fellowship UK, today in celebrating Albinism Awareness Day, with a special guest blog post from AFUK Chair, Roselle Potts. Help us to raise positive … Continue reading Albinism Awareness Day

Posted on June 13, 2018June 14, 2018Author Sue RickettsCategories Guest postsTags AFUK, albinism

How amazing is Rocco?


Rocco is 6 years old. He has Ocular Albinism and nystagmus, he also has other disabilities, but, for the first time in his life, his parents have got a report … Continue reading How amazing is Rocco?

Posted on June 7, 2018Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags albinism, amazing nystagmus success stories, nystagmus, ZING

Please vote for Ben


Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … … Continue reading Please vote for Ben

Posted on May 25, 2018Author Sue RickettsCategories Living with nystagmusTags albinism, Ben Haynes, competition, music, nystagmus, vote
Jay Self wearing scrubs.

Research participation opportunity – albinism in the over 60s


Albinism researchers in Southampton (Jay Self and Helena Lee) would love to hear from anyone with any form of albinism who is over the age of 60. If you or … Continue reading Research participation opportunity – albinism in the over 60s

Posted on November 3, 2017February 28, 2018Author Sue RickettsCategories researchTags albinism, nystagmus research

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