nystagmus network – Page 7 – Nystagmus Network

Mason is sitting on the floor of a sports hall holding a water bottle.

Mason’s nystagmus story

For Nystagmus Awareness Day 2023 we invited members of the nystagmus community to share their story to help people in the wider population to understand the condition. Thank you to … Continue reading Mason’s nystagmus story

The big ‘nystagmus’ meet up – Manchester

Saturday 23 September, 10am to 3pm You are warmly invited to join Nystagmus Network staff and trustees for our next in person event – the big nystagmus meet up, Manchester. … Continue reading The big ‘nystagmus’ meet up – Manchester

Gemma smiles for the camera. She has long, very fair hair and wears a dark top and necklace.

Gemma’s nystagmus story

To help raise awareness and understanding of nystagmus, we;re sharing all your stories this Nystagmus Awareness Day. You can share your story here This is Gemma’s story … My name … Continue reading Gemma’s nystagmus story

Claudia wears a white top, glasses and a floral crown.

Claudia’s nystagmus story

Thank you to everyone sharing their stories with us for Nystagmus Awareness Day 2023. You can share your story here This is Claudia’s story … Ours isn’t a complete journey, … Continue reading Claudia’s nystagmus story

Ella wears a pink dress and stands with someone wearing a large character costume.

Ella’s nystagmus story

We are delighted to share your stories of living with nystagmus to help raise awareness. You can share your story here This is Ella’s story … Ella was first diagnosed … Continue reading Ella’s nystagmus story

Robyn stands in a garden, wearing a Nystagmus Network T-shirt.

Robyn’s nystagmus story

All this week we’ve been sharing your nystagmus stories to help raise awareness of nystagmus for Nystagmus Awareness Day 2023. You can share your story here Robyn was first observed … Continue reading Robyn’s nystagmus story

Isabelle’s story

If you’d like to share your nystagmus story to help raise awareness we would love to hear from you. Share your story here This is Isabelle’s story … I was … Continue reading Isabelle’s story

Savannah wears a yellow polo shirt and blue-framed glasses.

Savannah’s nystagmus story

We are sharing your stories of nystagmus to help raise awareness of the condition. You can share your story here This is Savannah’s story Savannah’s Congenital Nystagmus was noticed by … Continue reading Savannah’s nystagmus story

Hazel is running a marathon. She is wearing a white T-shirt, black shorts and a bandana.

Hazel’s nystagmus story

Thank you to everyone who has shared their story for Nystagmus Awareness Day 2023 to help people understand the condition better. You can share your story here This is Hazel’s … Continue reading Hazel’s nystagmus story

Harshal’s nystagmus story

This year for Nystagmus Awareness Day people are sharing their personal stories to help everyone understand what it’s really like You can share your story here This is Harshal’s story … Continue reading Harshal’s nystagmus story