Harshal Kubavat headshot.

Thank you, Harshal

The Nystagmus Network’s newest trustee, Dr Harshal Kubavat has a young child with nystagmus. Like many parents, he had never heard of nystagmus before. After supporting the charity’s work in the research space as a volunteer for some time, Harsh joined us as a trustee in November 2021. He is now a stalwart of the research committee and also serves with the awareness team, overseeing our major events, such as Open Day as well as the research workshops and Symposium2022.

Would you like to join our trustee team?

Nystagmus Network trusteess

Trustee vacancies

Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus community in all its diversity or lived experience of nystagmus or another form of visual impairment?

If so, please consider becoming a trustee of the Nystagmus Network, a small charity with ambition to grow to meet the changing needs of the nystagmus community.

We are keen to hear from you if you have any of the following:

  • digital skills and organisational IT experience
  • professional experience in mental health support
  • first-hand knowledge of education and SEND
  • fundraising skills and experience
  • qualifications in benefits support
  • experience in clinical practice
  • a working knowledge of research
  • experience in corporate or employment law

Trustees are responsible for the strategic direction of the charity and oversee its operations. They also have legal responsibilities under charity law but no personal liability.

The full committee meets on a Saturday four times a year, alternately in person in central London and virtually via Zoom. In addition, trustees are expected to join at least one sub-committee (research, awareness, support and finance). These meet via Zoom either in the evening or daytime every 4-6 weeks. Occasionally, it is necessary for trustees to join a temporary working party to oversee an event, a project or staff recruitment.

The only other time commitments are attendance at the annual Open Day and support for Nystagmus Awareness Day.

Please contact us at [email protected] with a summary of the skills and experience you would like to offer. We will be in touch. If you would like to find out more before making a commitment, please contact us at the same email address to request an informal chat with Tim, our chair.

We welcome interest from people with and without nystagmus.

All appointments are subject to a DBS check.