The Nystagmus Network is a little charity with very big ideas. Do you want to be part of our exciting journey?
If you have the skills and time to give for just a couple of hours a month to support the work of the Nystagmus Network, we’d love to hear from you. Whether you’d like to provide IT support, flex your digital skills, help with fundraising, manage our online shop and post out orders or organise some local get togethers, please get in touch. Thank you.
Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus community in all its diversity or lived experience of nystagmus or another form of visual impairment?
If so, please consider becoming a trustee of the Nystagmus Network, a small charity with ambition to grow to meet the changing needs of the nystagmus community.
We are keen to hear from you if you have any of the following:
Trustees are responsible for the strategic direction of the charity and oversee its operations. They also have legal responsibilities under charity law but no personal liability.
The full committee meets on a Saturday four times a year, alternately in person in central London and virtually via Zoom. In addition, trustees are expected to join at least one sub-committee (research, awareness, support and finance). These meet via Zoom either in the evening or daytime every 4-6 weeks. Occasionally, it is necessary for trustees to join a temporary working party to oversee an event, a project or staff recruitment.
The only other time commitments are attendance at the annual Open Day and support for Nystagmus Awareness Day.
Please contact us at [email protected] with a summary of the skills and experience you would like to offer. We will be in touch. If you would like to find out more before making a commitment, please contact us at the same email address to request an informal chat with Tim, our chair.
We welcome interest from people with and without nystagmus.
All appointments are subject to a DBS check.
Trustees play an essential role in the running of the Nystagmus Network. Whilst it is not a role to be taken on lightly and may be demanding of time and skills, especially within a small organisation like ours, it can be rewarding for many reasons. Meet our trustees here.
The charity’s trustees share ultimate responsibility for making sure the charity is fulfilling its charitable objectives, and that all decisions put the needs of the nystagmus community first.
Becoming a trustee is a great opportunity to make a contribution. As a trustee you can guide the direction of the charity’s growth and have the opportunity to make a significant impact on an issue of value to you personally. It undoubtedly also offers professional development and the opportunity to work within a diverse team in support of the same cause.
If you would like to become a trustee of the Nystagmus Network and have skills in
please email [email protected]
Are you looking for a new opportunity to give your energy, time, skills and talent to support a small charity?
The Nystagmus Network is looking for people who would like to help the work we do as a volunteer, or join us as a Trustee to guide and direct the charity’s work.
The skills, talent and experience we would be interested in are:
For people considering offering their services as a potential Trustee, the minimum time commitments are one full Saturday four times a year, an evening or daytime phone call every 6 weeks, attendance at the annual Open Day and support for Nystagmus Awareness Day. Trustees have particular legal responsibilities under charity law.
If you have time to give us, then please drop us an email at [email protected] with a brief summary of how you would like to get involved and the skills and experience you have to offer. We will then be in touch.
We welcome interest from people with and without nystagmus.
