Mélissa was a healthy young woman, living and working in Canada until suddenly she acquired nystagmus and everything changed. Melissa is now adjusting to her new life with nystagmus and … Continue reading Guest post: Mélissa’s story of acquired nystagmus
Author: Sue Ricketts
Our new local groups
Our very first regional nystagmus network is already up and running in Manchester, hosted by our trustee, Marie. There are lots more local groups to come in 2019, giving more … Continue reading Our new local groups
Dr Helena Lee on treatment for albinism and childhood eye conditions
Improving eye development for children with albinism and other sight disorders – hear from groundbreaking researcher Dr Helena Lee, Academic Clinical Lecturer in Ophthalmology at the University of Southampton. Watch … Continue reading Dr Helena Lee on treatment for albinism and childhood eye conditions
Katie lobbies MPs
A Wandsworth student visited the House of Commons to lobby Parliament this week on behalf of Young Vision Alliance (YVA), according to an article in Your Local Guardian. Katie, who … Continue reading Katie lobbies MPs
Education information for all
Have you visited our online Education Resource HUB? You’ll find everything you need to know about supporting a child through education, as a parent, carer or teacher, from the early … Continue reading Education information for all
Last orders for Christmas cards!
Nystagmus Network Christmas cards will no longer be available after today, so please place your order NOW! Order your cards here.
Free benefits information
Information on nystagmus, DLA and PIP is available free of charge directly from our website to anyone who needs it. Download here. Individual support from our volunteer benefits adviser is … Continue reading Free benefits information
Never a better time to join
Joining the Nystagmus Network as a member means becoming part of the biggest nystagmus patient group in Europe. Alongside all the other benefits of membership, TODAY ONLY new members also … Continue reading Never a better time to join
Free run places
Would you like to take up a FREE run place for the Nystagmus Network? We have places in the London Vitality 10k on Monday 27 May (Bank Holiday Monday) and are about … Continue reading Free run places
Proud of our track record
The Nystagmus Network has been funding nystagmus research since the 1990s and, thanks entirely to the generosity of our members, fundraisers and supporters, we continue to do so today and … Continue reading Proud of our track record